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    Gumboil wrote on GregP_WN's wall

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    Gumboil wrote on JeffR's wall

    Hi Jeff! Greetings from London, UK!
    So sorry to hear of your illness. My brother-in-law is in a similar situation. He was diagnosed with two grade 4 GBMs in September. I wish you well, and if you want to swap notes or anything give me a shout xx

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    Gumboil wrote on marvsroom18's wall

    I'm so sorry to hear of your diagnosis.
    Particularly in one so young.
    When do you expect to start treatment?
    I have a dear friend/family member in a similar predicament.

    xx

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    Gumboil asked a questionBrain and Spinal Cord Tumors in Adults

    Question about *inoperable* Grade IV GBMs

    • carm's Avatar
      carm

      Gumboil,
      I am not a cancer victim, I am an oncology/End of Life nurse. As it comes to brain tumors GBMs or stage IV Astrocytomas are the mother of all tumors. They are inoperable because of their ability to produce tenticles that dive deep, so it is impossible to get it all. There have been great strides of late in the treatment of GBMs and your experience to date is the norm. Temodar is a great drug as well. I wish you and your friend the very best and I am always here if you should need anything, Carm RN.

      over 8 years ago
    • Fusionera's Avatar
      Fusionera

      I cannot speak to GBMs specifically, but I've had 3 craniotomies for my Grade III Oligoastrocytoma and lots of treatments . I was an original clinical trial participant for Temozolomide in the 90s, before it was FDA-approved and marketed as Temodar. I can recommend ways to make it easier for him to take if it's an issue.

      over 8 years ago