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    gwenstacy shared an experience

    Milestones: Well it has taken me a good six months to want to get back on this site. I just want to forget my treatments and smells(l.o.l) everything that I had to do for my cancer treatment. I didnt want any reminders. Im feeling so much better now, but am not half as strong as I used to be. I'm not back to work yet and am doing physical therapy. What cancer did for me is open up a whole new world of people suffering with pain and loss ect. and a whole new appreciation for the life I have and the time I have. My life is in Christ Jesus, its in Him that I live and move and have my being, and that death has no dominion over me.We are all in Gods hands. This is my comfort, and peace. God Bless all my friends and strangers on this hard journey.

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    gwenstacy posted an update

    I had my stem cell transplant on September 4th. I think at this point if I needed a second transplant down the road I would not do it. My caregiver told me maybe its like having a baby, after we give birth we think never again, but of course we forget the pain, I myself had five children, each a gift from God. They are who keep me going! I hope my experience is an exception to stem cell transplants. I've only been home three days and I barely have energy to write this! It seems like all the procedures I went through were down played, for example, when they put my palindrome in they told me when I woke up from surgery all I would need would be a tylenol, my butt. It was a horrible feeling of pain! I'm sorry if I'm scarring any one. That was just one thing, maybe I'm a sissy, but I dont think I am. For me I want to forget the whole experience it was next to a nightmare for me. Except for the beautiful people I met, and fell in love with each of them. I am now praying for excellent results so I never have to go through this again.

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    gwenstacy wrote on Rolltidelynne's wall

    Hi Lynne, just wanted to give you an update, Ive been at gift of life transplant house in Rochester, for two weeks now. in four days i start melphalan, for two days and then I will get my stem cells on the third day. Hope all is going well your way! God Bless!

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      Rolltidelynne

      Hi! I'm sorry I just saw your message:( by now you are close to getting your stem cell transplant. I hope the meds are messing w you too much! Remember just sleep it will help! I'm thinking of you. I will stay close yo my emails since you're there!!! I'm praying n thinking of you:))
      Lynne:)
      Hang in there! It's worth it, I promise!!

      over 3 years ago
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    gwenstacy wrote on Rolltidelynne's wall

    Good Morning! I hope all is well your way. I havent been online for a while. My son graduated this June, and I had a graduation party for him a couple of weeks ago! alot of work, even though I had alot of help it caught up with me a few days later, I was down for the count! I keep getting diverticulitis, one DR. told me it was the dex but I had it before I started the dex. I will see my regular DR. on monday about it. I have been on antibiotics twice for it, but I get a bad bout with it almost every week. Im in bed all day with the fever and chills and pain. I just get through it, but Im scared to death to eat anything. So now after last week I made another appointment and hopefully I can get this figured out! If you have a chance I'm wondering about what changes you have made in your diet, I try to eat healthy, but I do still eat junk food now and then. I have gone to the extreme and just juiced and ate only organic. I know there are endless sites about what we should eat and I have checked alot of them out. On August 20th I am scheduled to start my stem cell transplant. I will stay at a transplant house in Rochester MN and my Aunt will be my caregiver. I toured it back in May. I thought it smelled like fresh fish, on the hook fresh, L.O.L. but its a really nice place and the people are fantastic! O.K. I better get started on my day! Have a great day, God Bless!

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    • Rolltidelynne's Avatar
      Rolltidelynne

      Hey girl! I'm so sorry to hear about this latest thing you have to deal with. My answers regarding diet or change or lack of change on my eating is kind of odd. I too began eating as healthy as I could prior to my transplant. But after my transplant just eating anything was what they wanted me to do. As MANY calories as I could tolerate! They don't care bout healthy when you're at that point! I assume you can bring good to the facility for you or a loved one to make for you along with whatever they provide? My advice think of those "comfort" foods you probably have shuts away from and stock up on them to take w you. Your appetite will be gone:( drink a lot!! Real cokes, milkshakes, anything you love to drink! Bring peanut butter n marshmallows or bake potatoes loaded w everything! Calories ! I can't stress that enough. But don't beat yourself up if all you want to do is sleep and drink your calories:) make sure you bring things from home that make you comfortable and smile. If you wear makeup daily- put it on everyday. Try to keep as much of your routine as possible! Get a fun wig or hats! I wish I had known to enjoy the fun of wigs and hats. I was so self conscious w being bald lol. I slept w my hat on:) ha ha I hated my wig so I felt ugly. Since then I found great wigs that make me feel like me! I even got a red one when I feel like being different ha ha. So shop for a wig before you go!!! Even if you feel like XXX go by yourself or w a friend and try on wigs at a shop. I had no idea where to go:( but I noticed a shop in town that sold African American products and I went in thinking I would have to ask them to show me catalogs and order something. But to my surprise they had a lot of options and the ladies thre get a kick out of me coming in and getting my new wigs!! It's cheaper than getting my hair done at a beauty salon!!! And I get exactly what I want:)) I do believe I will continue w wigs for a long time!!!! Put yourself first for a change and go get that wig that makes you feel like YOU again:)
      As I've told you I really haven't had any side effects. Regaining my strength and eating were my two big issues. I have felt better than I did years prior since my transplant! God bless the doctors who discovered this treatment for us to survive and rejoin life:). I had heard, read, and been earned infections are hard on us after transplants and had fortunate not to have any. However three weeks ago I discovered a irritation on my left foot. I have neuropathy so you know I don't feel as much sensation in my foot as others who don't have that. Within a few days I could not walk on that foot for the pain:( it had also developed blistery bumps in clusters. Turns out I have shingles! I've been through two bouts of antibiotics and triple my acyclovir . Just yesterday I could walk on it. I see my drs on Thursday. My doctor here coordinated treatment w my hematologist to start my antibiotics. I'm sure they will tell me it's just one of those things we will have to endure. We need to be diligent in noticing little things that can become bigger things. Now over seven months post transplant I eat fairly healthy but I don't deny myself cravings for junk! I am at a weight the drs are happy with but I do fight to keep this weight so junk helps me to do that sometimes. If I go down five pounds I get a comfort food high in calories ha ha.
      I am do excited for you to get your transplant! I know right now you don't believe me that you will feel better, but I promised you and you will see for yourself. There will be those DAYS but just keep looking forward to the next day. Day by day you will get stronger!! Please keep me posted or have your supporters update me. I'm always here to boost you n share anything I know or have experienced:))
      I will be one of your biggest cheering fans!
      Until next time...
      Lynne

      over 3 years ago
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    gwenstacy wrote on Channa47's wall

    Good Morning! I have been reading your posts. Wow! I guess we just take it one day at a time. You are a strong lady. Thanks for sharing. God Bless!

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    gwenstacy wrote on BuckeyeShelby's wall

    Hi Shelby, Hope all is well your way! I havent been on what next for a while and wanted to just say Good Morning! God Bless!

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    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Hi Gwen. Life is pretty good right now. I'll be getting my first post chemo scan in a couple weeks. Hoping everything is still clear. How's life in your world today?

      over 3 years ago