• Gymmom's Avatar

    Gymmom wrote on HSguide's wall

    Hi! I have tried to get in touch, but I'm not sure you're seeing my posts. I would love to stay in touch. How are you doing? WhatNext won't print emails so I'm going to try this: donnajwhiteatcomcastnet. There is a dot after the j, the @ sign, and a dot after comcast. Let's see if this goes through. LOL

  • Gymmom's Avatar

    Gymmom wrote on HSguide's wall

    Thinking about you today as you have your second round of chemo. Hang in there!

    6 Comments
    • Gymmom's Avatar
      Gymmom

      I tried to send you something earlier but it may not of come through, so here I go again. Congratulations on little Fiona, my grandson Austin was born November 25. I’m here in Michigan enjoying Austin and his sister Bailey through the holidays. It sounds like the wedding is going to be fabulous. A château outside of Paris? Maybe I’ll fit in your suitcase! So what kind of wig did you get? Did you go long or short, straight or curly? I hope you have a wonderful time, I’m sure you well. Yes there were times when I just wished it was all over. Just remember you are closer to the end now than the beginning. There is light at the end of this tunnel. Have a wonderful holiday. Congratulations on being halfway done! Please stay in touch. Donna

      8 months ago
    • HSguide's Avatar
      HSguide

      Hello Donna! :)
      I am going to give you my email address here, because I'd love to keep in touch and am afraid I "unsubscribed" to WhatNext. Not sure I'll ever receive a message from you, if you send one through here. On February 13th, I had my last chemo treatment and the next day, my final Neulasta injection. It felt amazing to be finished and since I was the last patient in the infusion area (it was after 5:30 PM); I rang the ship's bell they have mounted to the wall....very loudly! I go for an echo-cardiogram Tuesday and a PET/CT scan March 23rd. If it is 100% clear, I will be considered in remission and my oncologist will give me permission to have my port removed. ...... I am grateful beyond measure to our God who is so generous and merciful! ..... How was your visit with little Bailey and baby Austin? Aren't grandchildren the greatest joy?! We are loving watching Fiona 3-4 days each week. We are exhausted by the time she goes home...but we wouldn't have it any other way. Last week, one day was too windy to walk - otherwise we walked 1.5 miles with her in her carriage. We live a block away from a large pond with ducks and geese. Can't wait til she's older when we'll feed the together. :) ..... Today I feel much better, but I was quite sick for about five days. The sickest actually since I received my diagnosis. On top of the harshest side effects ever, I got a sinus infection and terrible cough. Finally, I am on day #3 of the antibiotic and cough med with codeine. It was pretty scary at first as the cough was painful and I had no voice. ..... Hope you are well and in happy spirits! Hope I get to hear from you again. I think we are kindred spirits! Hugs from Connecticut! -Sheila my email: [email redacted] (Yes, there are 2 a's in the middle)

      5 months ago
    • Gymmom's Avatar
      Gymmom

      CONGRATULATIONS of finishing chemo! You are awesome.

      Whatnext redacted your email so I'm going to try and give you mine. I will put an "x" where the dots (there are two) and the @ sign go. If it doesn't go through maybe we can exchange email addresses on private message on Facebook. Are you on Facebook? Okay, here goes:

      donnajXwhiteXcomcastXnet Please email and let me know if you got this, and then I will be able to see yours.

      It sounds like you're having a wonderful time with Fiona. Aren't they fun? Austin stole my heart, and Bailey already had my heart. I left Michigan on January 2nd, and can honestly say I did not want to come home.

      I caught a cold on Christmas Day, and by the time I got home it had blown up completely and I was a coughing mess. Everybody at the house got sick, and I was the last to catch it. At least I didn't bring it to Michigan with me. LOL Anyway, like you, I ended up on antibiotics and even an inhaler. I finally kicked it, but the cough lingered for about 5 weeks. Ugh.

      Good luck on your Pet/CT! I'll look forward to hearing how it is, and fingers are crossed that you will get even more great news. Same with your Echo.

      I'm looking forward to hearing from you! -- Donna :-)

      5 months ago
  • Gymmom's Avatar

    Gymmom wrote on HSguide's wall

    Hello HSguide. I think today is your first day of scheduled chemo. I'm in California cheering for you!

    6 Comments
    • Gymmom's Avatar
      Gymmom

      YAY for Stage 1!! That is awesome news. Yes, I will stay safe. The fire up here is now 30% contained. :-)

      9 months ago
    • HSguide's Avatar
      HSguide

      Hi Gymmom/Donna! :) Well, the hair went. I ended up going to a small salon nearby home and having it shaved. Now I have white and dark patched of fuzz. I'm guessing that may fall out on it's own? I never thought of myself as a vain person but I can't wait to have hair again! I've done great since that first treatment (next one this Tuesday 11/19) but I did have a very severe pain reaction to the white blood cell booster injection I get the day after chemo. They said some people get bone pain, like in the sternum and thigh bones. But that taking Claitin for four days should take care of it. Well I took Claritin for four days and was great. Then stopped. The night of day 6 I thought an elephant sat on my chest! They said I was that small percentage where the pain is excruciating and longer than 4 days. Did you have that? I know for this next booster that I'm taking Claitin and extra-strength Tylenol straight through. ha! Thanks for letting me share and ask questions. - sheila

      9 months ago
    • Gymmom's Avatar
      Gymmom

      Hi Sheila!

      So your hair went. I remember having my head buzzed. For me the fuzz did eventually fall out and I was shiny all over. I noticed that my head was bit tender while the fuzz was falling out so don't be surprised by that. It was like my hair hurt at the roots.

      I did have a lot of bone pain with my white blood cell booster too. I had to do self injections at home for 5 days after each round. But remember, I was Stage 4. My pain was mostly in my back and neck. At the time I didn't know about Claritin. Wish I did. Keep an eye on it, and keep your doctor updated. Maybe they have something else they can offer or suggest if it keeps up.

      How are you doing otherwise? I hope you're drinking a lot of water. Staying well hydrated is so important. Also, I rinsed my mouth with water after eating to try and help reduce mouth sores. They are not fun at all. I had them a couple of times. Be sure to ask your doctor for "magic mouthwash" if you do get them.

      Do you have help at home? Please stay in touch. I'm happy to help any way I can. Hang in there...you can do this!

      Take care! -- Donna

      9 months ago
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  • Gymmom's Avatar

    Gymmom wrote on HSguide's wall

    Everyone feels different through chemo. I was told to take nausea medicine if I felt sick. I actually took it before they started but I never told them. WATER WATER WATER. As much as you can. I always drink more with a straw so that's what I use. If you don't feel like eating, I always kept little bowls of mixed nuts around. I could eat one or two and at least get fat, protein and calories. I became addicted to peanut butter. LOL If you need to sleep or rest, do it. Your body is telling you what it needs.

    On an emotional level... I finally realized that my body didn't attack me. Cancer attacked my body, and between my doctors, the medication and doing my own best, my body would be given a shot at being able to fight back. You can do this.

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    Gymmom wrote on HSguide's wall

    Hello HSguide. Yes I did have a port. Mine is still in place but I'll probably have it out after the first of the year if my next scan is still clear. The port is easy for most people. When you have your chemo they will access it with a small (very small) short needle. That's all there is to that. They can hook up as many lines as they need from just the one poke. When you're ready to go home they will flush the port to make sure it keeps running well. After you have finished all your chemo they will flush it every 4 to 8 weeks until you have it removed or in case you need it again. You don't have to do anything as far as taking care of it once the initial incision is completely healed. You can shower, swim, etc. with it. They usually draw my labs every time I get mine flushed. I asked my doctor when I could have it removed, and she said anytime I wanted to. LOL I was waiting for her to tell me, and she was waiting for me to say I want it out. We communicate really well, so that was pretty funny to me. Mine was tender when first inserted, but now I don't notice it. If you notice any new redness or swelling, or if you have ANY doubts, have the doctor or your oncology nurse take a quick look at it.

    4 Comments
    • Gymmom's Avatar
      Gymmom

      You can do this. Will you have your r-chop in the hospital or at home on a pump? I had my first round in the hospital, but they let me have the other 5 rounds at home on a pump. It was up to me, and the hospital was available to me the whole time if I couldn't manage it. You hang in there, and please stay in touch.

      10 months ago
    • HSguide's Avatar
      HSguide

      My R-CHOP will be at the hospital. They said to expect to be there from 9:00 to 3:00 minimum for first treatment. Then subsequent treatments will be shorter, as they will have adjusted the Rituxan to what it will be for me. Then, I return the following day for an injection. I will find out what that is for....I got so much information yesterday. I am happy that I will attend a basic Chemo Teach session on Monday, to get info and ask questions before showing up on Tuesday.

      10 months ago
    • Gymmom's Avatar
      Gymmom

      The injection you will be getting MIGHT be, (I'm not positive), neupogen or Neulasta to help keep you white blood cell count up. Here are some questions you might ask if they don't cover them: 1. Side effects of neupogen/Neulasta. (bone and flu like symptoms often occur) 2. Staying away from ALL sick people. 3. Staying away from people who have received a LIVE vaccine. 4. What about mouth sores if they come up? 5. What about holding small kids, etc. (I was told to put on long sleeves since the chemo comes through your pores.) 5. I was told to flush the toilet twice to ensure the chemo in my urine was gone completely. I'll be thinking of you on Monday and then again on Tuesday!

      10 months ago