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    hanginin99 wrote on crazyartdolls's wall

    Hi there.I was first Diagnosed in 11/2010 With AC. Had left upper lobectomy. Then told for almost a year I had "Intestinal inflammation.) Went for 1 year cat scan, only to be told I had PNETS.I had a Whipple in April 2012. I was started on Sandostain in August of 2012. Whe they changed the formulation of Sando in 2016 I got terrible "knots" at the injection site. (Poor discipation of serum.) I was started on Lanreotide 120mg in January 2017. Doing pretty well, if you need a listening ear[phone number redacted] or [email redacted]

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    hanginin99 wrote on pjkittles's wall

    Is this PNETS?

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    Question: Adenocarcinoma

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    hanginin99 wrote on mom25's wall

    Hi. My name is Toba and I am 62. I had a Whipple in April 2012. I am currently getting a Sando Injection every 3 weeks. I also take 6,000 Creon (Pancreatic Enzymes.) I have (Thank God) Never had Chemo or radiation. I wish we could have met under other circumstances. In any event, if you need to talk, feel free. I am not a full of info but have a good shoulder, and kind heart.

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    hanginin99 wrote on reggaegirl's wall

    You say you were diagnosed about 2 years ago. Why surgery "now" and chemo/radiation now?" I had my Whipple almost 3 yers ago and no chemo or radiation. Just curious. Hope you are responding well to treatment.

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