Nice to meet you. I actually have myelofibrosis but because it's not the list I have to identify with AML-and low & behold, that's what is happening, my disease is transforming to AML quite quickly. Myelofibrosis morphs into AML in 20% of patients. The stem cell transplant team met with me today for the second time. They actually found several matches on the Be the Match list so they'd like to do the SCT in November, after I have a battery of tests & get the port put in. Moving fast, I'm numb.
My Goodwill
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Hankster wrote on Deedge's wall
Happy Monday Young Lady ! Hope You Are Okay !! I Had AML and I'm A 5 Plus Year Survivor Myself. I'm A Better Talker Than Writer and My Name is Henry Smith. This is A "Tough" Disease. If You Would Like To Talk Anytime Call Me at[phone number redacted] I Live in Central Mass in Town Called Townsend. Thank You and God Bless.
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Deedge
over 4 years agoThank you!- From upstate NY, (ok way up north). Just found out I have several matches. Team scheduling SCT for November because of disease progression & transforming from myelofibrosis to AML.. Myelofibrosis is a type of leukemia, 20% morph into AML. Myelofibrosis is scarring of the bone marrow, which eventually becomes fibrotic & can't produce RBCs, WBCs, platelets. Things are moving faster than I thought they would.
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Hankster wrote on kelleygrlw's wall
Wishing You All The Strength and Good Karma Possible !! please E-mail Me anyThing you would Like to Discuss !! I use to Live in Ferndale MI and was Born in Detroit if That makes you Feel better Connected !! I Also have AML !! Peace and Comfort !! God Bless !!!!
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