• HeartsToYou's Avatar

    HeartsToYou shared an experience

    Decision Point (Hearts as a Gift): Since this journey began I am given Hearts whenever I am worried or have a crisis. I have learned that they are my assurance from the Universe that all will turn out ok. I get them in all forms, string, rocks, water, potato chips, you name it! But the most amazing of all was right in the beginning when they would appear as little red hearts on the skin of my left forearm! When the crisis would pass they would disappear...
    And the morning of surgery my relatives and I were sitting around waiting and I had my bare feet up on a coffee table and my sister pointed to the bottom of my foot....there was a Heart callous...a BIG one! I outlined it in pen and took a picture and when the doctor came out of surgery with the great news that he found NO cancer all my relatives believed my Hearts too. So my screen name is wishing you your OWN God-Given Hearts on YOUR journeys!

    1 Comment
    • Carol-Charlie's Avatar
      Carol-Charlie

      Oh my...That is amazing and wonderful. God has given you visual signs of His great love for you!

      almost 5 years ago
  • HeartsToYou's Avatar

    HeartsToYou shared an experience

    Celebration (Remission): I have been NED for (counting from when my CA125 was normal) 24 months....THAT is cause for celebration. Will credit the Lord for every day, every month I am given....to continue to do my "work" here- that includes taking my Therapy dog that I had trained for the purpose of volunteering- and we are not at University of Minnesota Children's Amplatz Hospital visiting the sick kids, recently the Oncology floor. Cady Grace is a natural! Calm, patient, obedient, she loves the petting....! And the smiles she brings to kids' faces in priceless.

    2 Comments
    • SpunkyS's Avatar
      SpunkyS

      Congratulations!
      Thanks for the therapy dog work. So effective.

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      What a lovely dog. Thank you for providing the love to bring to little ones and other hospital patients.

      almost 5 years ago
  • HeartsToYou's Avatar

    HeartsToYou shared an experience

    Other Care (Maintenance Therapy- Avastin): I am on maintenance Avastin- Last week was #25. This is the longest my gyn/onc has had anyone of Avastin so think I'm a test subject for him. Avastin side effects for me are pain- aching in joints and muscles, sinus problems, occ mouth sores.....the aching is really bad in damp or cold weather which is why I am going to Florida for the winter!! Was able to just spend last January down there and the difference in temp really helped. I will be getting my treatments from one of my gyn/onc's colleagues in Florida who he went to school with. Am considering stopping Avastin in the Spring but have read that many people have been on it for years and years and years. One Day At A Time philosophy tells me I will decide then and enjoy the decreased aching all winter!

    3 Comments
    • SpunkyS's Avatar
      SpunkyS

      Wow. 25 treatments! I am only on #7 since finishing treatment. That gives me an extra dose of hope.
      I too experience some of the achey joints. 6 weeks ago it was nasty. I had great compassion for people with rheumatoid arthritis. Now, it is not so bad. I also use more tissues in a month than I did in 6 months pre-treament.

      I like the idea of a trip to FL to help the ouches.
      Contiune to experience the blessings of wellness.

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      You might want to ask your oncologist about using Clariton/Benedryl combo. Clariton - morning and Benedryl in evening (12 hours apart) I know I had the pain from Neylasta Shots to kick my bone marrow into producing more white cells. This combination did wonders...

      almost 5 years ago
    • Dawn517's Avatar
      Dawn517

      I have been on Avastin since 8/15 and have about 20 more to go. My entire body hurts from top to bottom. Any relief out there that you have found? I am also on blood thinners so I cant take NSAIDS. Looking for relief!

      over 3 years ago
  • HeartsToYou's Avatar

    HeartsToYou shared an experience

    Procedure or Surgery (Bilateral salpingo-oophorectomy): My surgery showed a-mazing results....There was NO sign of cancer!! God or chemo had gotten rid of it. I had my ovaries removed, my omentum an it was no longer on my liver. Also, the gyn/onc told my husband that normally with chemo the organs get rubbery and mine were perfectly normal! I credit drinking Blueberry-Pomegranate juice every single day! Good anti oxidants. Twenty five other biopsies were taken and they were ALL negative. My surgery took only 1.5 hours, and an hour of that was my gyn/onc trying to FIND my ovary because it was buried under scar tissue....whether that was from the illness or from a lymphectomy I'd had 10 years prior I don't know. I like to believe that my cancer was "situational" and that under all that scar tissue my ovary just rotted. But don't know and guess will see!

  • HeartsToYou's Avatar

    HeartsToYou shared an experience

    Drug or Chemo Therapy (Chemotherapy): I first had chemo before surgery because they couldn't operate in a "lake" the ascites. They had drained gallons off me in the hospital. The chemo dried up the rest- carbo/taxol/avastin x 6 treatments. My CA125 was normal after the 4th treatment.
    My problem was that I also got seconday infections while suffering from chemo effects so had fevers, respiratory infections, sinus infections. And I didn't get nausea but had an aversion to food- it was like my mind said, 'Don't even Think about putting that cracker in your mouth!' Therefore I dropped 5 sizes of clothes!! And I'm not big in the first place so I was a toothpick which made me even weaker.
    I also had WBC problems so sometimes had to have Neulasta shots which cost $9,000.00 apiece! My immune system was so low I wore a mask whenever I forced myself out of the house which wasn't often!

    1 Comment
    • Carol-Charlie's Avatar
      Carol-Charlie

      I wrote this as my way to let my dear friends on another site know I had ovarian cancer... I hope it helps you too... I know our Lord has!

      I know!!
      ©2006 by Carol Notermann

      I know that I’m not in control… But Thank God that He is!
      I know that I’ve no need to plan, for the best plan is His.

      I know that I am not alone. Friends walk the path with me.
      I know that yes, I must be strong, find out what waits for me.

      I know that as in "Footprints" there's only one set in the sand.
      and I know that I am clinging, very tightly to His hand.

      Today, I'll see what doctors -- can do to help me stay
      here with all my loved ones, cherishing each day.

      almost 5 years ago
  • HeartsToYou's Avatar

    HeartsToYou shared an experience

    Oh No (Diagnosed): The 'Oh NO' was my diagnosed. Was getting fat tummy and what felt like a fallen bladder- went to 3 docs, showed them my pregnant belly which was non consistent with my small form, and they did nothing. I got so sick went to the ER, had a CAT scan and 2 residents came in and coldly and clinically diagnosed me with Ovarian cancer that had metasized to my omentum and liver.
    Within 1.5 hours I was installed in the Cancer ward- in shock not being able to wrap my head around it. Have spent my entire work life in Healthcare and had never come in contact with disease or the swelling would have registered with me.
    Life can change in the blink of an eye....so now I live One Day At A Time because that's all we have.

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      One day at a time, amen to that. I have been out of my last treatment 4 yrs, my last dx, 24 years from my first dx. All through the years I understand that on any given day you can wake up and feel another lump in your neck, as I have twice since the first dx.

      Thanks for posting and being on the site.

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      I went to my doctor every year for a complete physical.... I went to ER from intense back pain. I couldn't move. I told them it was sudden and worse than any from my 'normal' bad back..... They gave me muscle relaxants.... Six months later the oncologist removed a ton of fluid (exagerated) and a 39 lb right ovary.. (Not exagerated)... He removed all he could see...from my intestine and eurethea and I kept holding tight to God's hand. That was January of 06... I remain cancer free and will have my 70th birthday in May... God willing... I'm back to planning again the last few years... I live in Victoria MN

      almost 5 years ago