• HeatherMon's Avatar

    HeatherMon posted an update

    Starting chemotherapy tomorrow.... I'm nervous and so is he. Does anyone have any recommendations on how to make it through?

    • dan7264's Avatar

      Set the day of your chemo treatment aside as YOUR day. No interruptions, no hassles. You cannot go back and re-do it. This is the day that your support team works for you. It IS a matter of life and death.
      Moderate Exercise - After treatment, on the same day, take a brisk walk in the fresh air for about half an hour. This will help generate blood circulation through each inch of the approximately 25,000 miles of blood vessels in your body. Remember that lymphoma is systemic, not localized. Yes, this may be demanding for
      some and particularly toward the end of CHOP, but do what you can. After the walk, head home, to your hotel or wherever and get in a hot bath for at least a half an hour, longer if you wish.
      Hyperthermia - As time goes on, based on both research and personal experience, it is apparent that hyperthermia (heat) when combined with chemotherapy is
      likely the best means possible of increasing the effectiveness of the treatment. Hyperthermia is neither a new thing, nor is it a breakthrough in fundamental
      thinking. The concept is simple. Even the most basic course in high school chemistry…or even experience in one’s kitchen at home…makes it clear that
      chemical reactions are speeded up and made more complete by heating the ingredients. Hyperthermia in conjunction with chemo is standard practice at some
      expensive treatment centers both in the USA and Europe, but is not commonplace because of cost and logistics.

      about 7 years ago
    • DeniseD's Avatar

      I went equipped with books, computer and tablet. I found I didn't need a thing. I have successfully slept through all 6 of my R-Chop treatments. Hope you have the same experience. Prayers are sent.

      about 7 years ago
    • Tana928's Avatar

      Take some things along with you to keep entertained. Also don't worry too much about your preconceived notions. Many of us don't have the dreaded side effects that we hear so much about. After your treatment is finished try to do something that will keep your mind off of things. Walk, shop, movie something fun while you are already out and about.

      about 7 years ago
  • HeatherMon's Avatar

    HeatherMon asked a questionNon-Hodgkin Lymphoma (NHL)

    How do we tell the kids?

    4 answers
    • HOBO's Avatar

      Sorry you have to go through this. I can only say if you were the child what would you want? And, not every child is the same. When I was young I wanted to knowledge the truth BUT in words I understood.

      over 7 years ago
    • acshipway's Avatar

      Be honest with them, they will know something is going on and will probably be more concerned if they think you are hiding something from them. Keep it simple, at least for the little ones, maybe give your 15 year old a little more info, as you see fit. Best of luck to you.

      over 7 years ago
    • leepenn's Avatar

      Our family attended a series titled "facing cancer together" through the MN Angel Foundation (not a religious foundation)... We learned a lot about how to talk about cancer with kids.

      They recommended a few things.

      1 - kids need to know they'll be taken care of - no matter what.
      2 - kids need to know they cannot catch cancer
      3 - kids need a role to play - it can be something totally simple (one woman described her pre-schooler always opening and closing the car door for her) or less than simple (older child taking her to/from chemo treatments)

      They also gave us a lot of guidance about what kids in different age groups can developmentally handle. Our child was 9 when I was diagnosed, and we kept it darn simple but made sure we addressed the above three things. PLUS - the facing cancer together series provided a space in which our child could talk to other children with parents facing cancer diagnoses.

      I hope that helps. I wonder if there might be something similar in your neck of the woods? Talking to other parents helps a ton... I have to admit. And some of those people are now our good friends. And our child gained a lot by talking with other kids in his age group dealing with similar things.

      It sucks. Sorry you have to do this.

      over 7 years ago
  • HeatherMon's Avatar

    HeatherMon shared an experience

    Oh No (Other): My husband has decided to not return to the doctor despite recommendations for further scans and evaluation.

  • HeatherMon's Avatar
  • HeatherMon's Avatar

    HeatherMon asked a questionNon-Hodgkin Lymphoma (NHL)

    How do I best support my husband who wants to holistically treat his MCL?

    4 answers
    • Clyde's Avatar

      I understand his desire to avoid harsh treatment, especially in light of his diagnosis, but I can't understand not watching closely. Did he get a second opinion? You obviously can't force him but perhaps bargain with him or appeal to him to do it for your peace of mind. And allow him to gloat every time the test shows no change.........a little gloating will be a very low price to pay if you can get him to watch it closer. Good luck.

      over 7 years ago
    • Schlegel's Avatar

      I do not know about MCL. I have follicular lymphoma, a slow growing type. At one point I chose to wait over a year for treatment when I knew I had tumors so I could go on a mission trip to Haiti. My doctor was okay with this. After ten months changed my mind because I was getting more fatigued. I have a friend with FL and was diagnosed in 2007, tumors in her thigh, and she has never had treatment. Whether or not he will get treatment depends on where the tumors are and whether he is symptomatic. And, it sounds like, at this time, you should NOT be waiting on him.

      over 7 years ago
    • Ellie59's Avatar

      I understand your husbands desire to not go through the harsh treatment of chemotherapy. I believe strongly in alternative medicine and it's benefits for many chronic conditions. I have experienced first hand through acupuncture and naturopathic care those benefits .
      Having said that I also know that mantle cell is a aggressive cancer. Would he be willing to consider alternative medicine as complementary instead of exclusive. As far as No one has survived Mantle Cell using exclusively alternative treatments. I am not saying it can not happen just saying I have not heard of it. I am a support volunteer for the leukemia and lymphoma society. I take to many patients and 99 percent go with traditional treatment.

      I asked my own oncologist who is amazing and very alternative medicine friendly. He said in his opinion Mantle Cell is to aggressive to treat with anything but chemotherapy. Not that long ago Mantle cell was considered a terminal diagnosis. I had a stem cell transplant two years ago and am now a two year survivor . Yes the treatment was horrible and debilitating, but I would do it all again. I am still here and that is all that matters.

      I have known two people who tried alternative treatment for Mantle Cell. One lived 15 Months the other 8 months. I strongly encourage your husband to talk to other patients and survivors. To join a blood cancer support group, and contact the leukemia and Lymphoma society for info.
      It is a intensely personal choice how to treat our cancer. I can only speak to my personal experiences.
      You both are in my thoughts.
      Feel free to contact me or have your husband do so if he would like.

      over 7 years ago
  • HeatherMon's Avatar

    HeatherMon started following

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