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    User: CancerNews

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    Hoagie wrote on Roxy's wall

    I was diagnosed with vulvar melanoma a little over a year ago and had a radical vulvectomy performed. Within 2 weeks I went from being a healthy wife and mother celebrating my 50th birthday to being a completely debilitated cancer patient. Not only was there terrible physical pain to deal with but also the emotional pain of grieving the loss of essential body parts. It gets better. It is a process but it gets better. Allow others to take care of you if they offer and nurture yourself as much as you can. It gets better. It won't always feel this terrible.

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    Hoagie asked a questionVulvar Cancer

    What is life like 1-2 years after radical vulvectomy surgery?

    7 answers
    • Mirrii's Avatar
      Mirrii

      i have had two radical vulvectomys 1 for a severe sebaceous cyst that was size of a golf ball, 30mm x 40mm x 15mm which didn't deform me that much cause it was up the top in my pubic hair they removed some of my vulva but over all I was happy, results come back from first operation was possible squamous carcinoma.with second op I only wanted a small biopsy above the second stitch as I believed I didn't have cancer, I was left by 3 hospitals to get treatment to fight infection as I'm allergic to all antibiotics an was left to rot with no treatment for a ingrown hair. I am deaf and going blind and I didn't hear Doctor or see consent form,I said I would rather die then be mutilated. It was pre- mediated to mutilated me by this hospital, even before I went to this hospital they wrote to the hospital who did first op that they wanted to do a radical on me. I was lied to an was butchered an mutilated against my will a 70mm x 20 mm x 15mm was removed it took six months to heal. Result came back it was a infected ingrown hair. So I have been butchered over a ingrown hair, these Doctors are knife happy butchers who mutilate women against their will, to compare this to FGM it is much worse because more mutilation is done by radicals. To say to a woman that they can have a sex is horrifying their is no way I would allow a man to touch me when I want to vomit to just look at the deformity of my genitals. I feel like a desex dog. It's been two years and my clitoris is sown to flesh with pubic hair And drag over, my clitoris is smaller then a new born baby. I have no sexual feeling, I can't urinate without using a funnel and use baby wipes because the urine goes all over my legs genitals etc. I have a law suite against Doctors and hospitals for what they have done to me. It seems to me that Doctors in hospital are allowed to do this to women for maybe you have cancer or not, not enough care to just do small surgeries to check before going to the kill and just slaughtering a womens genitals for nothing. It's not a question wether a women has cancer or not, no one owns your body and it should be your choice to have what surgery you want. I can't sit , wear pants, jeans etc, I can't ride a bike, Or ever have sex again, I can't walk far because pubic hair rubs an causes infection and pain. I haven't been with anyone for 8 years, It was two years ago that I had this done to me and I have had no reconstruction, laser treatment to remove pubic hair, etc left in this horrifying condition. All women who are faced with this night mare of having to go through this should get 3 or more test to prove that it's cancer, only get biopsy first so if it's not cancer you won't be mutilated. With technology in the world to day, plastic surgery, that they can't do better job in making a woman genitals look more normal. It is disgusting, mutilating and out right butchering these Doctors and it's male Doctors should be castrated and placed in jail. Would a man chop his XXX off if he had a sore on it, no he wouldn't. I feel for you Luvy I understand what you are going through I know I feel my womanhood has been robbed and butchered. My name is Mirrii I hope I haven't upset you by what I wrote but I think you would understand me because we have been through this horrible worst thing a woman can go through, their is no amazing let's fix it, I suggest people need to look at pictures on the net to see what we have been through take care hugs Luvy

      about 5 years ago
    • MikeysAmy's Avatar
      MikeysAmy

      I just had my second vulvectomy. The first was in Jan 2013. I'm this time 2 weeks post op, and I can say the pain is something I can not fathom. I am nearly 2 years after the first surgery, and after about 5 weeks of recovery, life went back to semi normal. I did have the worry in the back of my mind that it would come back and it did. As far as sex, I didn't notice a huge change except a little embarrassed that I may look different. Last time it was nearly impossible to see, this time is more noticeable and looks significantly different. As for mood, being just 2 weeks post op and still in this amount of pain, I do a lot of random bursts of crying and declaring I cannot do this. But guess what, I am cuz there is no choice. And I know from personal experience, life goes on after this surgery, even if life is different. Hang in there. Never miss an appointment for follow up. This stuff grows fast. I see my Dr every three months when I'm not having surgery. The emotions and physical issues, like everything in life, ease thru time. ..

      about 5 years ago
    • AngelFree's Avatar
      AngelFree

      I HAD A RADICAL VULVECTOMY IN 2004 AT THE AGE OF 28. I AM 41 NOW. I WENT THROUGH SO MANY BOUTS OF DEPRESSION. JUMPED BACC INTO DATING ONLY TO BE VIEWED AS A FREAK. I WAS LUCKY TO HAVE BEEN APART OF A GREAT SUPPORT SYSTEM, MY MOTHER, SISTER AND AN EX WHOSE SUPPORT WAS HORRIBLE AT TIMES BUT GOT ME BACK INTO THE SWING OF THINGS. LIFE GOES ON BUT YOU ASK WHY ME? ALL THE TIME. SOMETIMES I HATE LOOKING DOWN THERE. DREAD ONCOLOGY VISITS AND HAVE BEEN DENIED GOVERNMENT'S BENEFITS AFTER I HAD IT FOR 6 YRS. I STAY DEPRESSED AND FAKE A SMILE. STAY DILIGENT ABOUT SEEING YA DOCTOR, EAT RIGHT AND ATTEMPT TO STRESS LESS AS POSSIBLE. EVERYONE ISN'T SHALLOW. SOME MAY EVEN LOVE THE NEW LOOK. STAY BLESSED AND KEEP THE FAITH

      over 2 years ago
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    Hoagie shared an experience

    Procedure or Surgery (Surgery): I had a radical vulvectomy and had significant pain for several months following surgery.

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    Hoagie shared an experience

    Oh No

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