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    HOBO asked a questionEndometrial (Uterine) Cancer

    Appealing long term disability denial

    14 answers
    • HOBO's Avatar
      HOBO

      Boise,
      Thanks for the suggestion. Livestrong navigator has agreed to review my written appeal. However, they told me they did not have any legal.services. but I can try the legal advice at our senior center. I called all sorts of legal referral in our surrounding area, but no one does private disability, only social security disability. I never dreamed I would be in this situation. I worked so hard to come back from this. Originally, my gyn/onc was willing to work at making me disabled. I was still in the wheelchair at that time and I did not want to give up. I was determined to return fully. Now I wish I had done it. I really believed with my whole heart I would be 100% again. Found out today my vitamin D and B deficiency is probably due to celiac disease. I need further testing. Keeping my fingers crossed with mega doses my body will absorb the needed nutrients. Alas, I am upright. Still breathing and kicking, just not as high as I would like.

      4 months ago
    • cards7up's Avatar
      cards7up

      Why not go for the SSDI again? Are you still on treatment? Don't know your story, so can't say too much. But that recent letter from your onc should be enough. They may have you go to their doctors as well, but it's worth a try. You won't get Medicare though for 2 years. How long ago were you treated? How long have you been NED?

      4 months ago
    • HOBO's Avatar
      HOBO

      cards7up
      I do not qualify for SSDI as the last 20 years I worked for local.government that did not pay into SSDI. Our city purchased private disability through Prudential in lieu of SSDI. SSDI requires current credits. I paid into the system for 19 years early in my working life. I finished treatment in November 2013. Was not declared NED until spring of 2015 as I had too much radiation damage for doctors to judge. I returned to work on June 3 2014, part time for four hours per week. I tried to work my way back to full time, but never was able to work full time.. after a year at part time, my city employer kicked me to the curb. In order to keep my medical coverage I had to retire. I am stable and NED now as the spots that shows on scans are considered benign. I continue to have anemia, fatigue, and neuropathy in my feet.
      Just this past week I was tested for celiac disease and am pending consult with gastroenterologist. My Vitamin D and B require treatment and doctors are finally trying to figure out why. I know nothing about celiac disease but assume the gastroenterologist will enlighten me. I have no idea if chemo/radiation can cause it or not. All I know at this point is I only have a limited amount of energy. I can successfully manage daily living, but not working and living. When I tried to work, I pretty much went to work and that was it. Maybe getting celiac disease treated will return me to a more energized life. I hope so!!
      Jane

      4 months ago
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