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    Homans wrote on Ckferr's wall

    Hello, I’m Steve over near Sedalia, Mo. i was diagnosed with a form of Large B Cell Lymphoma, stage 4, back in Feb. of last year. I suggest you read up on your options, and think about going to a teaching hospital that deals with this type of cancer, as I believe you will get the best care there. They are up on the latest treatments. I had a form of large B cell called ‘Double Hit’, in short it was a very aggressive cancer that used to have a poor prognosis, but I got the new CAR-T immune therapy, after two failed chemo treatments, and so far it has wiped it out. I will have a 1 year scan coming up June 5th to see, but I haven’t had any more issues, so I’m hoping for a got scan. I used KU and haven’t regretted it. This can be beaten, so don’t let it get you down, and if you have any questions, I would be glad to give you more details on how my treatment went and what to expect. Best Regards, Steve H.

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    Homans wrote on rebeccatf3's wall

    Hello, Rebeccatf3,
    I was diagnosed with large B cell, NHL double hit, stage 4, back in Feb. 2019, so I expected to fail chemo, and I failed two different standard chemos after a total of three twenty one day cycles, my cancer was so aggressive, it grew back to where it started before my treatment, then I qualified to received CAR-T immune therapy June 2nd, which wiped out all my B cells, along with the cancer, and I have been in remission ever since, so it’s not always bad news, even though you will most likely get pretty down during your treatment. My way of dealing with it was to learn as much as possible about it as I could.
    Cancer sucks, but if eradicating your B cells can solve your cancer issue, you have a good shot at a cure with CAR-T. I was treated at KU. God bless you, and let us know how your doing.

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    Homans wrote on Tanuki's wall

    Hello Tanuki, like Judithj, I was stage 4 with ‘double hit’, which is a more aggressive variant of Large B cell Lymphoma, and after two failed chemo treatments, I got the new CAR-T immunotherapy, and so far I haven’t had any recurrence. You may need to go to a teaching school hospital to get CAR-T since it is not offered everywhere yet, so ask about it if they don’t say anything about it. I was told at my last checkup at KU that CAR-T has been moved up to a second line treatment now, or I had to fail a first and second line treatment before I got CAR-T, but I would think you could get it right away since you already had prior treatments. Wishing you the best.

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    Homans wrote on Marycham's wall

    Hello Marycham, I was diagnosed in Feb. 2019 with Large B Cell Non Hodgkins Lymphoma (NHL), Double Hit, and went through two 21 day treatments of R-EPOCH and one 21 day treatment of R-ICE. Both failed as we figured as NHL ‘Double Hit’ is a rarer very aggressive sub type of NHL. I was stage IV, but no organ involvement after a small bowel resection surgery, or involvement in my spinal fluid or brain.
    Double Hit was only newly classified in the last 8-9 years I believe, and conventual chemo would not work on it, but a new third line treatment called CAR-T immune therapy worked and had me in remission after 30 days.
    If I understood the CAR-T coordinator at Kansas University (KU) correctly, I believe CAR-T has now been approved as a second line treatment for certain sub types of NHL, so if you have a certain sub type of NHL, and fail a first line chemo, you can get CAR-T now as a second line treatment, instead of a bone marrow transplant (BMT) - if the facility your being treated at has a CAR-T program setup. Not all treatment facilities have it yet, and even many of the teaching schools don’t have it yet. I feel blessed KU had it.
    CAR-T uses your bodies own immune system to kill the cancer. They remove some of your disease fighting T-cells and reprogram them with a Virus and they re-infuse them back into you and they now can recognize the cancerous B cells, and if it works correctly the cancer is obliterated. There are some risks, but for me it was worth it for a shot at a cure.
    Learning a much as I could was how I dealt with my NHLtreatment, and just wanted you to know about this, if you don’t already, as I think it’s a game changer for NHL patients. I sincerely hope you have a speedy recovery, Steven H.