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    User: CancerNews

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    User: badano

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    Hopegirl asked a questionSarcoma - Adult Soft Tissue Cancer

    Any new chemos/clinical trials for mixoid liposarcoma?

    • carm's Avatar
      carm

      I am an oncology nurse and I dabble in research as well. I have, of late, seen Nexavar used in cases of sarcomas so you might want to ask your oncologist if it might be a fit for you. It is an oraledication taken twice a day. Best of luck to you, Carm RN.

      almost 4 years ago
    • Bruno's Avatar
      Bruno

      I'm also a liposarcoma patient; I'm on a clinical trial that has been working for the past few months but it's closed now. It compares Eribulin with Dacarbazine; I'm in the Eribulin arm. I hope they approve it fast so it gets available for everyone.
      Other option you may be interested to look at is immunotherapy. There is a study going on at NCI, Bethesda, Maryland (very close to Washington DC) for liposarcoma patients. You need to have th NY-ESO gene expressed in your tumor (which happens in more than 90% of the liposarcoma) plus you need to have a certain type of blood, to be ablt to participate.
      I wish you the best

      almost 4 years ago
    • eilat's Avatar
      eilat

      My husband has had liposarcoma for 9 years, and has had 7 major operations.

      Nothing seemed to work until he was offered Eribulin in a trial. He had 11 tumours, and they all shrank and some dissapeared completely. He was on this for 2 1/2 years. Then the cancer started to grow back. He then went on Votrient, which controlled the tumours for another year.

      He is now on Doxoribucin, administered in a low dose once a month as a control and so far so good. He has been on this drug for 6 months now. I do hope this helps you.

      over 3 years ago
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    Hopegirl asked a questionSarcoma - Adult Soft Tissue Cancer

    Suggestions for dealing with a shorter leg from surgery

    • cam32505's Avatar
      cam32505

      I would hope that your medical team would set you up with the right treatment for this, as it will affect other parts of your body. If a doctor doesn't order something, your insurance won't pay for it.

      about 4 years ago
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