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    HotRodTodd asked a questionProstate Cancer

    Facing a recurrence, lots of different feelings swirling around

    10 answers
    • c1a1c1's Avatar
      c1a1c1

      Whitey - no, in FL - but we corresponded recently re genetic testing - he had 47 (I think) genes tested and he did not have the ones needed. We will ask the dr. next week about the test you mentioned. Thank you!

      3 days ago
    • TerriL's Avatar
      TerriL

      I'm sorry you are facing this battle again. Most oncology departments can refer you for free counseling to deal with your mental issues. You got through this once, and although it is scary, you can do it again.

      2 days ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Hi Todd. I know you've seen my recent recurrence story. I spent the day I found out throwing myself several pity parties. Decided I was ok with being a total mess that day, but I was determined to pull up my big girl pants and start fighting the next day. And for the most part, that is what I've done. Do I backslide? Sure, I'm human. Don't have a treatment plan yet, but I'll work on healing from surgery for now. Med oncologist isn't gonna start anything until the wound vac is off, and it sounds like it might be awhile as the incision was kinda big.

      2 days ago
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    HotRodTodd posted an update

    In case anyone was planning on trying to get some of this medicine that is being "tested" on its efficacy for treating covid-19. This from a doctor.

    DANGER IN CONSUMING CHLOROQUINE AND HYDROXYCHLOROQUINE
    Chloroquine and hydroxychloroquine, that have proven effectiveness in the treatment of diseases such as malaria, lupus erythematosus, some forms of arthritis, and other maladies that have shown promising, but not proven, results in treating COVID-19.
    As a result of this news, some prescribers have written prescriptions for these drugs for friends, families, and even themselves as prophylactic measures, thus depleting the stocks for both patients with known indications for treatment using these drugs and also potentially for individuals confirmed as having COVID-19.
    Chloroquine and hydroxychloroquine use have a potentially significant risk. These agents have a narrow therapeutic window (the toxic dose is not much greater than the therapeutic dose). Side effects include eye, neurological and cardiac toxicities. It is therefore critical not to take these meds without physician evaluation and prescription.
    This information was prepared by Dr Glen I. Reeves. A radiation oncologist, Arlington VA
    Read more at Read more at https://laryngectomeenewsletter.blogspot.com/
    Itzhak Brook MD

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    HotRodTodd asked a questionProstate Cancer

    I am a year or so out of treatment and I still can't get back to normal sleep.

    7 answers
    • Charlieb's Avatar
      Charlieb

      One of the biggest culprit that has a permeant affect on sleep is steroids. Everyone who I have talked with that has been on high doses of steroids is plagued with sleep issues.. Before I had cancer I was given a high dose of sol Medrol for neurological issues. That was over 30 years ago and I have had issues with sleep ever since. Now, with cancer treatment with dexamethasone 7 years ago I get between 4 to 6 hours. Currently undergoing treatment and, well, it is almost 4:00am and I've been up for about an hour!

      6 months ago
    • Bengal's Avatar
      Bengal

      Gee, Charlie, I wish I'd know you were up and on What Next at 4:00 AM. I was wide awake too. We could have had a chat. Sleepless night make getting through the day tough.

      6 months ago
    • schweetieangel's Avatar
      schweetieangel

      I'm the same.. I take sleeping pills prescribed and sometimes those don't help at all or I'm sleeping 11-12 hrs and still feel like I need a nap to get through my nausea and anxiety and its been over a year since my reoccurance.

      5 months ago