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    HSguide started following

    User: Gymmom

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    User: shoreditchjo

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    HSguide wrote on shoreditchjo's wall

    Hello shoreditchjo! Thanks for your response. Congratulations on being a survivor! I went from almost shoulder-length to just under my ears. I am going to the salon in a few days to go really short. It's a psychological step for me...as the trauma of losing my full, long hair would be too hard. I found a great organic salon. She will kindly shave my head when I need that. I am guessing I'll be like you ~ hats preferred. However, I will buy a wig for my daughter's wedding in December. Happy Autumn! :)

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    HSguide asked a questionNon-Hodgkin Lymphoma (NHL)

    How soon for hair loss?

    8 answers
    • Marycham's Avatar
      Marycham

      My chemo regimen is epoch which is given in the hospital 24 hours a day for a week. I think that sped up my hair falling out and it began to come out in large pieces as soon as I got out of the hospital. My beloved beautician shaved it for me and styled my wig at the same time. I’m having fun buying chemo caps in every color to match my outfits and think I will probably wear those to the grocery store Etc. I’ve made it through my second cycle and still have some eyebrows and some eyelashes but assume those are going to disappear soon enough.

      almost 2 years ago
    • jomak's Avatar
      jomak

      I also received R-CHOP for follicular lymphoma. My oncologist told me it would happen right around 12 days after my first treatment. We'll, that twelfth day came and went and I still had my hair. I started thinking I was that person who wouldn't lose their hair on R-CHOP...I was wrong. Started losing my hair in clumps while shampooing about a week later., Each day a little more. I was joking around with my wife one evening about how easy it was coming out and grabbed a clump and pulled and made a large bare patch that made it look like I had leapord spots. After we stopped laughing, I decided to get my head shaved pretty short which wasn't a big deal since I am retired military and normally kept it kind of short anyway. Funny thing is that shaving it seemed to stop the hair loss pricess so I never really went completely bald. It normally all comes back (and bald is in style) so go out and get a few new hats and embrace the baldness!

      almost 2 years ago
    • Gymmom's Avatar
      Gymmom

      Hi Charlie1944. Welcome to the site.

      about 1 year ago
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    HSguide shared an experience

    Procedure or Surgery (Implant chemotherapy port): My port implantation went much better than I had expected. It's been 10 days since receiving it and it's still not real comfortable sleeping on my side.

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    HSguide shared an experience

    Oh No (Just Diagnosed): I've just been diagnosed with Diffuse Large B Cell Lymphoma. In two days I'll learn what stage and my treatment plan.

    1 Comment
    • Homans' Avatar
      Homans

      Hello, I was diagnosed with the same Diffuse Large B Cell Lymphoma back in February of 2019, but mine also had a rare genetic variation they called ‘double hit’ DHL. Without going into a lot of detail, mine was bad due to being very resistant to chemo, which it was. So after failing to go into remission after two different standard chemo treatments, I qualified to get CAR-T immune therapy As a third line treatment, you can get CAT. They remove Some your own disease fighting T-cells From your blood and send them off where they add some genetic code that will tell your new CAR-T-cells, once they are put back inside you, to recognize the B cell cancer, and it will kill it if everything goes right. This treatment isn’t offered at a lot of cancer treatment facilities, only some of the bigger teaching schools like KU Cancer Center were I went are setup to implement it. If you had the standard line of treatment therapies like chemo and/or bone marrow transplant and your in remission, then great, but if it does come back, check into the CAR-T. I’ve been clear over a year now, and doing great, and my cancer Is gone, not just suppressed. I was stage IV. God Bess, and hope you have a speedy recovery, Steve H.

      11 months ago