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    Hydra asked a questionLung Cancer

    Has anyone with lung or prostate cancer been treated with the Tarceva (Erlotinib) pill? How effective has it been?

    4 answers
    • Fran100's Avatar
      Fran100

      I have lung cancer Stage 3B (inoperable). I just started on Tarceva
      yesterday (2/24/12). Unfortunately I cannot give you any response about if it's working. But I pray that it does. Keep in touch so I can share with you as times goes on.

      almost 5 years ago
    • Fran100's Avatar
      Fran100

      I forgot to mention that I have the exact same lung cancer you have.
      My tumor is near my aorta and that is why its inoperable. I have the mutation gene that made me a candidate for Tarceva.
      Let's keep in touch so we can compare our experiences once you begin Tarceva. God Bless!

      almost 5 years ago
    • teecup's Avatar
      teecup

      Hello everyone, I remember 4 years ago I searched forums like this to see the survival rate of stage 4 lung cancer patients, I would read inspirational stories, and not so uplifting ones. And today I thought I would share mine. 4 years ago my mum was diagnosed and given 9 months... the good news is, she is still fighting strong! It has not been easy at all. She has gone through failed chemotherapy, then the Dr prescribed tarceva. She had been using tarceva for just over 3 years when the Dr began to see growth of the main tumour in her lungs. (Not to worry, medical science advances all the time, she is now on a new drug: Afatanib).
      To answer Hydra's question, the drug does not sit well with everyone, but it is worth the try. I remember when she first started using tarceva, its side effects were a very painful form of acne,(the dr lowered the dose after), diarhea and dry skin, also cracked nails. But these side effects compared to chemo much better. With chemo she would sit in bed or on the couch all day. And we would have to make her eat.
      I do not know your circumstances but the downfall unfortunately is that tarceva is very expensive, we are greatful that in Australia, the healthcare system is supportive.

      If i could give you any tips, its diet. My mum eats alot of dark greens now, less red meat ( its acidic, acidic food feeds cancer) Alkaline foods such as cellery are good for you! there are books on cancer and food that can help you. My mum also visits a naturopath. This helps keep her immune system strong. Google 'Spirulina' you can buy it in health food shops. And it is amazing for your immune system. I wont lie it tastes gross.. but mix it with apple juice and it will go down!

      Im sorry this is so long, but sometimes we all need some positive news to help us keep going... You can fight this, Dont be afraid to take tarceva as I believe it has given my mum not only more years with us, but also better quality of life compared to chemo. I really do hope tarceva works for you, replace any negative thoughts with positive ones! It makes a difference, surround yourself with light hearted warm conversations. Dont dwell on it, just keep moving.

      I have not been in your shoes. But I can relate very much to what you are going through.

      If u have any questions about the drug, just let me know.
      Good luck ladies... and most of all God Bless xxxx

      about 4 years ago
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    Hydra shared an experience

    Radiation: Radiation Oncologist told me that my tumors were too numerous to immediately treat with radiation (I am also non-operable at this point). The reason is that the sensitive lung tissue could become too damaged. After my final chemo in Dec, he will check my scans to see if I'm more treatable.

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    User: Trey

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    Hydra shared an experience

    Drug or Chemo Therapy (Chemotherapy): I had my first chemo on Monday 10/31.., yea scary Halloween. I didn't feel much the first couple of days. The digestive upset is really awful still on the Saturday after. Bone pain and body aches easier to deal with.