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    Question: Immunotherapy

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    IKandy shared an experience

    Side Effects (Chemo brain): I was afraid of losing my hair. But didn't. Thinned a little. I did all my chemo through my veins till they blew out. So comes the port. I had alot of fatigue. An still having issues with fatigue. An my joints hurt. An I have been doing some stupid stumbling an fallen a few times just recently.

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    • LiveWithCancer's Avatar
      LiveWithCancer

      Your experience sounds so much like mine!

      My oncologist told me that only about 10% of people didn't lose their hair on the regimen I got but I didn't lose mine either. Mine got really unruly though. I sort of wished I had lost it instead (in some ways ... in other ways, I felt very happy it didn't fall out)

      I waited to get the port until my veins were toast ... I wish I hadn't waited so long now.

      Chemo brain is real ... ugh! I hate it! But, I acknowledge it and just tell people I'm sorry that chemo brain is at work when I can't remember something.

      I have overcome a lot of the fatigue issues ... I get more tired than before I was diagnosed with cancer but am able to live pretty full life now. I haven't had "traditional" chemo in a year or more. though. The immunotherapy I get now has not given me the same horrid fatigue that I got from traditional chemo.

      Good luck!!! I wish you the best, IKandy!!

      about 3 years ago
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    IKandy shared an experience

    Drug or Chemo Therapy (Chemotherapy): When I was diagnosed. My husband decided it would b a good idea to divorce me. But I sure as XXX didn't let that drag me down. It had a huge impact on me. I have been NED for a little over a yr now. An getting ready for another ct scan soon. Thats the hardest part for me..

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    • LiveWithCancer's Avatar
      LiveWithCancer

      I am so glad that you didn't let your ex drag you down. What a sorry person.

      Congrats on your NED status!!!! Praying hard that you'll get another NED report after your CT scan!!!

      about 3 years ago
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    User: GregP_WN