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    IKickedIt asked a questionColorectal (Colon) Cancer

    Neuropathy Status Quo for Years - Suddenly Getting Worse

    9 answers
    • papabill's Avatar
      papabill

      Been thinking about you over this long holiday week and hope that you might have found some suggestions that can offer you relief and if not to certainly discuss this with your oncologist at the earliest opportunity in this new year. Perhaps, and hopefully, your oncologist might have some suggestions or at least recommend to you a neurologist who might have some experience in treating chemo-induced peripheral neuropathy. Best in 2017 and keep the faith.

      19 days ago
    • alivenwell's Avatar
      alivenwell

      Just curious: Did you experience swollen feet/legs during/after treatment? I saw one person like that. I think that person was prescribed a diuretic. I would also totally agree with seeing a neurologist.

      19 days ago
    • papabill's Avatar
      papabill

      In answer, alivenwell, I do not recall having swollen feet/legs during/after treatment, although ironically my feet do feel -- without any visual signs -- as if they are swollen at all times, especially when walking.(and barefoot is out for me). I regularly examine them and for all intents and purposes appear normal and even my podiatrist (as it is vital to keep nails trimmed) indicated no visual swelling. As they say, "chemo is the gift that keeps on giving." Maybe you will have some good input with your neurologist, and if so,please pass it along to all of us. Keep the faith.

      19 days ago
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    BuckeyeShelby wrote on IKickedIt's wall

    Happy anniversary!!! May you have another 100 years cancer free. My 5 years comes in August. Looking forward to that.

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      IKickedIt

      Thanks so much! Let's hope we will all be celebrating MANY anniversaries to come!

      about 1 month ago
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    Nyphrodel wrote on IKickedIt's wall

    After looking over your page & activities on this website: you are an exceptionally loving & giving person who is willing to share in the struggles of others. On behalf of all of the people whom you have touched on this site: THANK YOU!!! <3<3<3

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    • IKickedIt's Avatar
      IKickedIt

      Thank you. I feel that I went through my cancer experience for a reason...just trying to figure out exactly why. Perhaps it was so I can help others. I am a cancer coach and find it rewarding and therapeutic, though difficult and emotionally draining when I lose someone dear to my heart.

      4 months ago
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    Nyphrodel wrote on IKickedIt's wall

    I saw a post of yours regarding CIPN. I too have CIPN & am progressing but I'm still hoping for healing in time. I'm just checking with you & others to see if you've had any improvement since that time. How are you getting on now? Any improvement? I hope & pray that you're feeling better <3

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    • IKickedIt's Avatar
      IKickedIt

      I had good improvement during my first two years, but minimal since then. Not non-existent, but very, very minimal. Hands are back to 90%, but have poor fine motor skills and still drop a lot of things. I just realized that I am starting to feel cold temperatures with my feet (it's actually hyper-sensitive and can be painful), but still can't feel heat. So, I don't walk barefoot, especially on pavement or in the sand during the summer. I'm still learning to adapt...it is what it is, at least I'm alive and cancer-free. How long ago did you finish your treatments? I am coming up on my 5-year mark later this month!

      4 months ago