• Chrissiesback's Avatar

    Chrissiesback wrote on IKickedIt's wall

    Hello the “love/hate” port person! I had finally found another person that feels the same way that I do about the port. Wondering how your coming along 7+years later. My port was installled Feb 13/2018 & the fact that it saves my (weak finding Veins) was a no brained. However- I find myself being very sensitive on the port side (which is located on the opposite of my breast cancer) No surgery yet. Chemo first . I just have a constant reminder where it’s at (mostly where the neck incision was put-not so much where the Port actually is) I feel every stretch, bend-twist. It can feel kinda hot at times & itches. Sometimes it feels like it’s runnin up to ear. I have no blockage or infection as my medical staff is amazing at playing things safe! So- I asked: why all this discomfort? Do I need to accept & live with it? And just XXX TFU? And, The answer must be “Yes” cuz there seems to be no other definitive answers. I am over weight & do wonder if having a double chin aides to such discomfort- I just wish it would go away! Hopefully soon all this will pass. And yes- I would have a port put in again- (for obvious reasons) but unless there’s one heck of a great reason to keep it in- this will be outta here just like my cancer! With the good God’s blessings beside me. Chris/Largo Fl

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    IKickedIt asked a questionColorectal (Colon) Cancer

    Thinking of Cancelling Appointment with Oncologist - How Many Years is Enough?

    16 answers
    • Annebal's Avatar

      Gottcha! Have you done research on protocols on your cancer follow-ups?

      20 days ago
    • Jayne's Avatar

      Great question and one with no concrete answer! I finally hit my 5 year NED (originally diagnosed in 2005) and decided to work with my PCP for surveillance. My Onc retired since I do rely on my CEA levels, my PCP could do that. I believe this is a personal comfort issue: if you feel more comfortable seeing your Onc, do it!

      20 days ago
    • BarbarainBham's Avatar

      Remember that people do get cancer after 5 years or even after 10 years. No matter who orders it, continue with your tests with someone.

      BoiseB, although a PCP can do a pelvic exam, I've always heard that your PAP smear is only as good at finding cancer as the doctor who takes it---(their eyesight and judgment).

      18 days ago
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    IKickedIt asked a questionColorectal (Colon) Cancer

    Neuropathy Status Quo for Years - Suddenly Getting Worse

    10 answers
    • alivenwell's Avatar

      Just curious: Did you experience swollen feet/legs during/after treatment? I saw one person like that. I think that person was prescribed a diuretic. I would also totally agree with seeing a neurologist.

      over 1 year ago
    • papabill's Avatar

      In answer, alivenwell, I do not recall having swollen feet/legs during/after treatment, although ironically my feet do feel -- without any visual signs -- as if they are swollen at all times, especially when walking.(and barefoot is out for me). I regularly examine them and for all intents and purposes appear normal and even my podiatrist (as it is vital to keep nails trimmed) indicated no visual swelling. As they say, "chemo is the gift that keeps on giving." Maybe you will have some good input with your neurologist, and if so,please pass it along to all of us. Keep the faith.

      over 1 year ago
    • geekling's Avatar

      You could try a b12 methylcobalamin supplement.

      You could stop eating small fish (sardines, mackerel, whitefish) which are high in uric acid.

      You could add sprouts and berries to your daily food.

      Next time you go for a blood test, ask that all of your vitamin & minerals be checked. There is always a way but it may not be easy.

      about 1 year ago