• ILDenlou's Avatar

    ILDenlou started following

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  • ILDenlou's Avatar

    ILDenlou wrote on SMT4's wall

    hi my friend how are u doing thinking about you .let me know loved your book .denise

    2 Comments
    • SMT4's Avatar
      SMT4

      I'm doing well thank you I am determined to get a normal life going! LOL How are you?

      over 2 years ago
    • ILDenlou's Avatar
      ILDenlou

      are u in remission yet been thinking about you im in remission but have wird syptoms not myself yet how about you

      over 2 years ago
  • ILDenlou's Avatar

    ILDenlou wrote on SMT4's wall

    whos scan is that shannon are u ok ????miss talking to u
    den

    4 Comments
    • ILDenlou's Avatar
      ILDenlou

      shannon i m doing ok how was that scan that you were afraid of are they giving you med to kill it im sorry that i ask so many quiestion this is how i learn because alot of people are still battling this cancer a girl i work with 6 years her tummor marker isnt normal im going to have untrasound of my throat and tummor marker done in feb i dont trust cancer i loved reading your book still reading it that you for being my friend its always nice to talk to you love denise

      over 2 years ago
    • SMT4's Avatar
      SMT4

      Dont every worry about asking questions that is why we are here :o)

      That is the thing with cancer you do have to stay on your toes and do the best you can, but don't let it run your life, well the best we can do not to let it run our lives ;-) Right now they are just having me stay on normal dose of levothyroxine. The lab I was with switched formulation and the pharmacist forgot to notify me so that threw me for a loop for a couple weeks because apparently when they switch formulation some of the inactive ingredients can cause side-affects. It is all better now and I have adjusted to it.

      I am glad that you are enjoying reading the book. I wanted to put that out there because so many of us go through this but not many of us have people to turn to
      like we do. That can make the journey seem very lonely.
      I hope all goes well with your ultrasound, and the tumor maker is such a good idea, I did it as well. I think it gives us a better understanding hopefully of how to treat this cancer. I will continue to pray for you.

      Sending Love and Well Wishes
      Shannon

      over 2 years ago
    • ILDenlou's Avatar
      ILDenlou

      you are such a good friend i always think of you you are very brave and i feel God brought you into my life i tell u the truth the one that helped me float threw this cancer was the Lord when i think of the 40 something biospys which is 6 needles each i cant believe how wonderful he helped me float threw it all and 5 hour radical surgery with moderate congestive heart fauilure and brought me threw that thats why when people tell me i have a good cancer it makes me upset cancer cancer people dont have a clue on how our life is impacted from all they put us threw
      i love talking with you God bless you my friend talk soon Love denise

      over 2 years ago
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    ILDenlou wrote on GregP_WN's wall

    greg what were your sysptoms of tonsil squamous cell carcinma on cat scan they are quesitioning if i have that how did u find it how good are cat scans denise

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      The only outward symptom I had was a swollen lymph node in my right side neck. I had nothing else. I also had a cat scan in the beginning of that diagnosis that was inconclusive. They done a needle biopsy on the swollen lymph node that confirmed it. Followed by a scope on my throat with a camera to look around, he seen the tonsil didn't look right then we were off to scheduling surgery. Hope you get an answer soon.

      over 2 years ago
    • ILDenlou's Avatar
      ILDenlou

      they said i have thicking of my soft paltlet how good is cat scan i was sick for 5 weeks felt like a lump in my throat thatr went away i dont have tonsil anymore my dr said thyroid cancer doesnt spread to throat i hoping what they saw is wrong ill let you know i was dx march of 2012 with tall cell thyroid cancer took a bad hit in mouth from i131 lost 7 teeth leison all over my tongue saliva gland is damaged never to be normal again real scared cant deal with another so close tired all the time cant even think of it thank you for getting back to me denise

      over 2 years ago
  • ILDenlou's Avatar

    ILDenlou wrote on SMT4's wall

    how is your lung doing my friend

    2 Comments
    • SMT4's Avatar
      SMT4

      Hi
      I go in on the 8 of January for a full ventilation study. Little scared they inject rad in veins and radioactive gas through a mask and scan the area . Weird !!!! But I will get through this . Thy found two new nodules and a mass on the liver . Oh bother in the word of Winnie the Pooh!!!

      over 2 years ago
    • ILDenlou's Avatar
      ILDenlou

      Hi my dear friend i am so sorry this is happening to you i will say a prayer tonight for you i been reading your book it is a good book i am learning what you went threw is thyroid cancer in your lung and liver
      You are a very nice and brave girl you will kick its butt please let me know how your doing i went in for a colon infection and they took a cat scan it showed stuff in my throat that is concerning them went to see my surgeon she doesnt know what there talking about there is growth in back of my throat seeing the surgeon again jan 3 my thyroid cancer dr said thyroid cancer doesnt go in the throat im hoping there wrongthat its not another cancer why are they going to do this test jan 8 is it to kill it i hate cancer .Love Denise

      over 2 years ago
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    ILDenlou wrote on kschmitz's wall

    hi my name is denise i was diagnose with papillary-tall cell carcinorma march 2013.i am in remission since aug of 2013 i had 40 biosipys in my throat which was 240 needles 5 hour radical surgery took saliva gland 12 lymph nodes 1 par thyroid and whole thyroid in hosiptal for 6 days with i131 lost 7 teeth and have lesion all over my ton gue from i131 my platlet drop down because of i131they took at hit too but im still here im 59 years old still very tired take lots of naps.well thats my story i want to wish you a very MERRY CHRISTMAS.Love Denise