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    GregP_WN wrote on inaJAR's wall

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    inaJAR started following

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    inaJAR asked a questionColorectal (Colon) Cancer

    Opdivo for Metastatic Colon Cancer

    5 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      inaJAR, i was sitting in your shoes 4+ years ago. My chemo wasn't working. Getting into a clinical trial for Opdivo was my last ditch effort. In fact, when i got into the trial, i thought i was doing it for altruistic reasons. I thought i was helping the future. I didn't expect to benefit personally.

      For me, my tumors responded immediately. My scans were stable for 4 years. Even now, the Opdivo is controlling the cancer in my lungs (we are not sure if the lung tumors are gone, with only scars left or inactive tumors). So, we are radiating the one tumor that quit responding. I will be returning to Opdivo treatments in October.

      There was NO comparison for me between chemo and Opdivo. I was very sick and fatigued when getting chemo. I was never sick with Opdivo. (Keep in mind everyone is different, but most people notice how much easier Opdivo is compared to traditional chemo.)

      If you have any questions i haven't addressed, let me know!

      5 months ago
    • inaJAR's Avatar
      inaJAR

      That's amazing. It gives me lot of hope. Living with the future as a big fuzzy question mark is so trying. I guess we are blessed to be living in the age of immunotherapies. I will pray for continued good response for you. Thank you!

      5 months ago
    • SandiA's Avatar
      SandiA

      Hi! I was on opdivo off and on for about two years. The results were amazing. I have been off treatment for about a year now and all remaining nodes have remained stable. The side effect weren't too bad. Mostly fatigue, fevers and chills and just for a couple days after treatment. About a year into treatment I ended up having some joint issues and eventually had to stop treatment. I ended up with rheumatoid arthritis, but if I had to do it all over again I would. The results were worth it.

      5 months ago
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    inaJAR shared an experience

    Decision Point (Clinical trial): To start in Fall 2017 for Opdivo. I have MSI-H and trials in US show good response with this mutation. Waiting until scan in mid-Sept to see if I am a candidate.

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    inaJAR shared an experience

    Oh No: Tumors has shrunk 60% after 5 chemos. After 10th. They had regimen again. Told Chemo not working anymore

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    inaJAR shared an experience

    Drug or Chemo Therapy (Chemotherapy): 10 rounds FOLFIRI+ Avastin. feb - June 2017