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    indigoninja wrote on CAS1's wall

    thank you for your response. From what I am reading...seem to be good results from proton therapy but only a total of 20,000 have been treated since 2008...and that is for all cancers included not just colorectal. Still on the fence about it. Went to see my radiation oncologist and told him I had to either rule in or rule out the proton therapy before I could move forward....

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    indigoninja asked a questionColorectal (Colon) Cancer

    Radiation Treatment - Proton Therapy

    • CAS1's Avatar
      CAS1

      Yes, I have done a number of postings about Proton Radiation. Here is what i know.

      Radiation send a beam into your body. That beam emits radiation all along the length of the beam with the strongest dose at the end of the beam. Unfortunatly the radiation beam touches tissue all along that beam that can couse a number of effects including tissue damage.

      Proton sends a beam but only emits radiation at the end inside the tumor so all the tissue along the way is not radiated. This is in part why formerly treated areas can still take Proton radiation but not conventional Radiation.

      Its new, its expensive and only available in a few locations in the uSA but from what I am reading has been very successful in clinical trials that are still on going.

      Let us know what happens and what you learn tomorrow and good luck.

      over 4 years ago
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    Decision Point (Hi I need to make a decision on radiation/chemotheraphy): Hi...please help..I am newly diagnosed with stage 3 colorectal cancer. I have had CT scans with contrast done. Do you also need to do pet scan? There were some nodules found in my lungs that are non calcified. Do i need to get a pet scan?

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    • dhall's Avatar
      dhall

      Ok what Next is a great resource!! But you need to have confidence in your Doctor / medical team and ask, the question, take your time digesting the answer - where timing windows are applicable.... Guess I have been lucky as far as having extreme confidence in the medical staff surrounding me, down to social workers! I don't think there are allot of one size shoe fit all answers or experiences - personally there were times I put blind faith in the professionals around me.... but did so with confidence in my decision!!

      over 4 years ago
    • Peroll's Avatar
      Peroll

      Hello and welcome to WhatNext.dhall is right that you need to develop a good relationship with your Drs as they will be with you for a while, but you also need to be able to ask them questions and get answers. Only your Drs can give you the medical advice you need. That said we here can give you some help in what to ask and understanding what is going on.

      Based on what I see on your page you were diagniosed with colon cancer 20 days ago and have had a CT scan so far. I am assuming that the original diagnosis was made as part of a colonoscopy and that the CT was a follow up scan. You first need to know what a CT and a PET scan really do. A CT scan sees differences in tissue density and a PET scan see metabolic activity. Cancer is usually denser and more metabolicly active than normal tissue; however, there are a number of things that can look like cancer in CT and PET scans that are not cancer. Spots on the lungs and liver that look line cancer are common. Thus something more is needed to positively deterine if your spots are cancer. The only way to know for sure is to biopsy the spots or to see if they grow like cancer. If they are not cancer you are stage II or III and if they are cancer you are stage IV (I have stage IV colon cancer).

      In either case this is not a death scentance it can be successfully treated and it may be possible to eilminate the cancer. You need to talk to your Drs and get the results of the CT scan and thier interpertation of the results. You also need to ask them what the treatment plan is so that you can understand what will happen to you and what you can expect in the way of treatment. You will most likely get chemo and may have surgery to remove the colon tumor. Removing the lung spots if they are cancer is more of a problem but it can be done, I had one small tumor from each lung removed back in 2007 but it all depends on the location of teh tumor. There also are a number of other treatment options including radiation, cyber knife and radio frequency ablation to name a few. There has bee a lot of good research into treatmens over the past few years, I personally have had three drugs and two surgeries that were not possible 8 years ago when I was first diagnosed.

      Also in the future if you have a question like this post it in the questions area and more people will see it and you will get more responses. Good Luck and let us know if you have any more questions or if we can help in any other way.

      over 4 years ago
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    Oh No