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    ironmikey started following

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    Question: fistula formation

  • ironmikey's Avatar

    ironmikey asked a questionStomach Cancer

    fistula formation

    9 answers
    • carm's Avatar
      carm

      It is a large chamber and every patient I have had who has had it says the treatment is really boring. They usually have a library of movies that you can watch while in there. That is only one option. You say your still not 100% sure you understand. What part of my post are you still unclear about? How can I help to clarify? If you would like to discuss further, I can get my number to you if that will help.

      1 day ago
    • ironmikey's Avatar
      ironmikey

      I dont even know I'll need that. sorry I didn't understand. I don't know what to think... I'm a little scared to be perfectly honest.

      about 19 hours ago
    • carm's Avatar
      carm

      Mikey,
      To be afraid of what you do not know is a natural reaction. We always fear the unknown. But if it is the surgery, I'm sure you will do fine because you have such a desire for life. Those that have a goal, have a direction...they know where they are going and where they want to be. They let nothing deter them from their goal. Remember that these doctors work for you, not the other way around. You have every right to demand clarity, to ask what you can expect with every option you have been given. I will always be right here to help you in any way that I can. It's your right to feel fear, but never let it drive you...just keep pushing towards the life you want to get back to and you'll be there before you know it.

      about 15 hours ago
  • ironmikey's Avatar

    ironmikey asked a questionStomach Cancer

    support groups

    6 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was going to mention the same thing as Greg did. If there's a Cancer Support Communities (CSC) group in your area, they are phenomenal ... or, the ones I have visited in my area are. I attended a meeting in Philadelphia with CSC - they have a large facility in that area. They brought in cancer survivors from all over the country for a two-day meeting.

      I have a friend (@coco1101) here who runs a support group. I'm not sure if it is still affiliated with the hospital where she was when it was started or not. Anyway, cancer survivors meet monthly for fellowship and information. If she sees this, maybe she'll chime in with more info. We're in Texas so that won't help you, but it may be that your clinic has something similar ... or maybe you could help start something like it.

      Good luck!

      3 days ago
    • IKickedIt's Avatar
      IKickedIt

      Have you checked to see if Einstein or Penn have support groups? Or https://cancersupportphiladelphia?

      I grew up in Plymouth Meeting. Hope you enjoy living there!

      3 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Since you go to a large Philadelphia facility and doctor, ask at the doctor's office also. There's an online GIST group, but I'll have to look it up & give you the link later.

      1 day ago
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    Question: support groups