- Rockaway, NJ
- Member Since Mar 2012
Their Diagnoses (1)
- Patient: Adenoacanthoma, Endometrioid Adenocarcinoma
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 70, Stage III
- View this journey (19 Experiences)
Ivy wrote on gofigure4's wall
Hello and welcome,
I had the da Vinci surgery followed by chemo and radiation, so I'm pretty familiar with the road that follows. I, too, was apprehensive about having a port implanted and dealing with the whole process. It all sounded barbaric to me. The procedure isn't as bad as it seems. My only problem was that "twilight" anesthesia isn't quite sufficient for me. So if that's the case for you, hit them over the head with that fact before hand.
That said, with the port you'll be glad that you aren't dealing with chemo directly infused into your veins as that can cause problems, for your veins long term. Also, before each chemo, and on each checkup, there will be blood tests. Your veins will need a rest, so do spare them the brunt of the chemo infusions.
If you're starting chemo is 10 days, try to get the port in now so it's healed before it's used for chemo. If possible, have this procedure done in a hospital. That's just my preference, as some doctors do it in their offices. I like to err on the safest side!
Do let us know how all is going. If you have worries or questions, as many of us do, feel free to ask. You will get good advice as will as encouragement. Family and friends want to provide that, but it's hard for them to understand what you're going through unless they've been there.
When it's all done, getting the port removed is really not such a big deal. As my granddaughter would say, "Easy peazy." Well, almost!
Good luck with everything.
Ivy wrote on Tryst's wall
So sorry you are facing such extensive followup. I was a state IIIC but did not need pelvic exteneration. My only suggestion, to get perhaps more information as an answer to your experience and implied question, is to provide a bit more detail. Some types of cells require a bigger blast of treatment, and some levels of cancer involvment with other types of tissues also require more extensive treatment. Probably there are people on this site with this experience, and they will be able to help more if they have the same specific diagnosis. There will be others who can speak directly to pelvic exteneration in general.
That's my only thought, and it's not as helpful as I'd like to be. In the meantime, continue seeking information just as you're doing, and I'll be sending positive thoughts to you. Best wishes coming your way.
Ivy wrote on Sparkles8's wall
So sorry you're having to go through all this. Many of us have been down this road, and once it's over and behind you, life gets much better. Brachytherapy was for me a miserable experience, but it appears to have been worth it. In a few months it will be my 5-year surgery anniversary. I'll hope you have the same or better outcomes. Let us know if you need info or just a sympathetic ear.