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    User: KendallHHC

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    jack0679 wrote on ddkk3's wall

    Hi! I saw that you commented on my post and I hope your treatments are going as good as they can possibly go. If you have any questions about chemo treamtents don't hesitate to ask. I'm 26 so we are somewhat close in age :) Good Luck!

    2 Comments
    • ddkk3's Avatar
      ddkk3

      Thanks! So far, it's been going pretty well. I must ask, though...did you have any coughing symptoms? I was coughing for almost a year before they figured out what was going on! Obviously this was due to the location of the tumor. I'm about 2 months into treatment now and my cough is gone : )

      over 4 years ago
    • jack0679's Avatar
      jack0679

      No I didn't have any coughing symptoms. Actually I didn't have any symptoms besides the lump on my neck. That's awesome your cough is gone! I remember when I was going through the chemo I could feel the lump on my neck getting smaller and smaller with each treatment until I couldn't feel it at all. I think it's cool to have stuff like that happen cause it reminds you that the chemo is doing it's job! Take care and keep in touch :)

      over 4 years ago
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    jack0679 asked a questionHodgkin Disease

    Experience with radiation

    • GregP_WN's Avatar
      GregP_WN

      I had Hodgkin disease twice 24 years ago, and was radiated in the lower jaw down to upper abdomen. Then 4 years ago had SCC, tonsil. I was radiated again in the neck/lower jaw. My biggest warning/advice is to be sure your teeth are in good order. And stay after them in upkeep. Not just brushing everyday, but after the radiation kills back your saliva glands you will have a dry mouth. Keep water with you to swish several times an hour. Wash out and brush after eating everytime, and go see your dentist or oral surgeon. Depending on how much radiation you will have, several treatment centers are now recommending to have teeth removed prior to treatment to prevent the possible side effect of Osteoradionecrosis. We ran a piece on this in our blog click here to see it. =>https://www.whatnext.com/blog/posts/preventing-the-dental-side-effects-of-head-neck-cancer-treatment

      over 4 years ago
    • ddkk3's Avatar
      ddkk3

      I'm sorry, I can't offer any advice but I would love to hear more answers to your question if anyone else replies. Looks like we have the same issue (nodular sclerosing Hodgkin's lymphoma). My tumor is also in my mediastinum. However, I still have a few more months of ABVD to go (I've only finished 4 out of 12 treatments).

      over 4 years ago
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    jack0679 asked a questionHodgkin Disease

    Hair loss with ABVD treatment

    9 answers
    • Dktrevor's Avatar
      Dktrevor

      I as well did not lose all of my hair. The hair on my entire body thinned but I never lost it all! Most likely you will just be thin until it starts growing back after treatment. Best of luck to you!!!

      over 4 years ago
    • activegirl's Avatar
      activegirl

      I have had 7 chemotherapy treatments and my last one is Monday (yay!) . I still have about 25% of my hair left, although all my infusion nurses said this was extremely unusual. It's very thin and sparse with bald patches so I always wear a hat or halo. Don't worry! The ABVD is working :) Your repeat PET should be assuring. Good Luck and stay strong!

      about 4 years ago
    • Tjonesnuevo's Avatar
      Tjonesnuevo

      On my 8th chemo this wed don't worry I still have my hair too. It's just thinned out but I still have a short pixie look to it. My pet scan showed it was working so don't have any worries about that it's working! :) be positive

      over 2 years ago
  • jack0679's Avatar

    jack0679 asked a questionHodgkin Disease

    radiation after chemo (ABVD)

    8 answers
    • packerbacker's Avatar
      packerbacker

      I had my chemo and radiation together. Radiation was 35 treatments, every day (M-F) for 7 weeks, 20 minutes each. I got chemo once a week.for 7 weeks. My follow-up PET scan revealed the tumor on my tongue was basically gone, but they found a new growth in my lung. My side effects included the extreme fatigue, and it killed my salivary glands. It's been almost a year and a half and the dry mouth is improved, but still bad. According to my onc, I tolerated the 2 treatments well. So, it can be done right away, but like some have said, sometimes they wait. I think it depends on the patient and the type of treatment you received with chemo. Best of luck to you on your journey!

      over 4 years ago
    • cancervivor's Avatar
      cancervivor

      I started my radiation the next week.

      over 4 years ago
    • grammapila's Avatar
      grammapila

      My daughter was 23 and also had nodular sclerosing Hodgkins in 2007. Her treatment plan was 6 rounds of ABVD to be followed by 35 radiation treatments. She had a PET within 2 weeks of completing her chemo, and - NO CANCER! She never had to have the radiation and she is now 5 years cancer free. I will pray for the same outcome for you!

      over 4 years ago