• jackieg's Avatar

    jackieg wrote on Lynne-I-Am's wall

    Hey Lynne, how was Denver? We were supposed to be moving o was unable to make it, but move fell through. Hope you had fun and were able to see some of the gang

    4 Comments
    • jackieg's Avatar
      jackieg

      How wonderful. Wish I could have been there

      20 days ago
    • jackieg's Avatar
      jackieg

      And I am sure you did wonderful. Your story is so compelling. You are able tho bring everyone into your story

      20 days ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Well, I want to hear all about your experience on the next call. You too have a very compelling story lady and I know you will do great.

      20 days ago
  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on jackieg's wall

    Just saw your cancer update on Facebook. Big congratulations lady.

    1 Comment
    • jackieg's Avatar
      jackieg

      Thanks, like I tell everyone don't give up. I have had almost 100 treatments in the past 5 years and it is finally going the right direction. The Avastin is working overtime, doing more than it is actually supposed to do. I am happy.

      23 days ago
  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on jackieg's wall

    Hey lady, saw your response to Barbara about your question. What are you doing up in the wee hours of the morning? Guess I am not the only night owl on this site.

    3 Comments
    • jackieg's Avatar
      jackieg

      No. I was sleeping pretty good for about an hour earlier and then my husband made some kind of noise and woke me up. Needless to easy, I was wide awake and now after about 3 hours of sleep I asm awake again to go heflp my sin with his garden

      about 1 month ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Yes, it is that time of year. I am very busy weeding. I swear there are new and different weeds that pop up every darn year. Perhaps you will able to take a re energizing nap after your morning is done.

      about 1 month ago
    • jackieg's Avatar
      jackieg

      Lynne, I actually feel pretty good after being outside all morning. I then went to the store and came home and washed the critter. I will be ready for bed early tonight

      about 1 month ago
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    jackieg started following

  • jackieg's Avatar

    jackieg asked a questionOvarian and Fallopian Tube Cancer

    chemo brain vs. chemo fog

    18 answers
    • geekling's Avatar
      geekling

      @jackieg. It was the lies that had me to agree to going to that awful grey death zone. It was being there that depressed me.

      I have become a little more skilled at protecting myself but they get you every time. The first time I asked detailed questions but relied on the answers of only one person who turned out to be a bubbameister. I stopped with him in the middle of treatment as I considered whether or not to continue. He tried to defend his lies to me. Ugh.

      To rid myself of a blood disease (a result of a botched chemotherapy infusion) I took experimental drugs. I followed the results of the drug testing and finally agreed to an off label use of a combination of them because, with that protocol, no one had died.

      The drug company hid that the drugs were sulphamoids to which I am very allergic. About 1/4 of the population is allergic but, alas, my allergy is extreme. I could have prepared myself better. I could have defended against the inflammation the allergy produced. I found out, by accident, about six months after my 'cure' while I was still a bit crazed and foggy and (seemingly unreasonably) angry.

      I immediately took steps to abate the allergy. That was a year and a half ago and I am still taking steps. When I first told the renouned specialist doctor, he doubted me. It took him over 6 minutes to confirm my words on the company website for prescribing doctors.

      I could go on but I get boring. Something is always being hidden from us lab rats.

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      Jackieg, it sounds like maybe your BP went low or something from anxiety, which is more resolved now. I fainted one time at the dentist when they gave me a shot. They put an oxygen mask on me and everything. Later when I warned the dental school about it, they gave me a small dose with a doctor in the room. My heart started racing, etc., but they focused on keeping me calm, and gradually I've now almost gotten over it.

      I'm not afraid of going to the dentist, but I am nervous about the shots.

      about 1 month ago
    • geekling's Avatar
      geekling

      @BarbarainBham it is a thing unto itself.

      For me, it lasted for months. The world becomes flat and colorless. There is no vibrancy.

      It is kind of the diference in feeling when you take a brisk walk to when you trudge along at the end of a 10 mile hike with a full pack.

      There is no joy. You might notice something but you do not react maybe because there is no extra energy.

      A gf took me to Art Basel right after treatment while I was still in a grey zone. I noticed a piece which normally would have elicited a big response out of me. At the time I did not even give the work a second glance as trudged on through the show. I had a photo of me taken that day in which I looked like a big fat bunny rabbit trembling with fear and very trepadatious.

      Years later I realize how much the piece affected me but, at the time, everything was grey and seemingly meaningless as I had no energy or volition to react.

      I was just spent .. For several months.

      about 1 month ago
  • jackieg's Avatar

    jackieg wrote on Broken_Angel's wall

    Hi Broken Angel. I hope you have had a chance to read all the answers to your questions. It can be very scary when you are first starting out. I found that after seeing how good the nurses were that first treatment, when I went back for my second one I felt like a pro. I don't know if you have started your treatment yet but make sure you take some things that make you comfortable. You may be able to read or do puzzles, but a lot of people sleep. Make sure you tell your doctor how you are feeling as he may be able to give you something for anxiety or even have to talk to someone. That often helps. I wish you good luck with your treatments and please keep us updated as to how your are doing. Hugs and prayers.