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    JACKY21 asked a questionStomach Cancer

    Any one with a Gist Tumor Diagnosis? Did you take Gleevec?

    6 answers
    • krissyann64's Avatar
      krissyann64

      I had stomach cancer and a tumor, but not sure if it was GIST. I was on EOX. :) I feel so dumb, because I don’t know much about my own cancer diagnosis. I was kind of in a fog.

      about 4 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Jacky21, I'm newly diagnosed, had surgery to remove the GIST two months ago, and have just ordered the Gleevec to take. Did you start taking it and tolerate the side effects? I have searched the survival rate of GIST patients, and its based on many things specific to your own tumor and pathology report. You probably have discussed this with your doctor by now, and I hope he told you about the recurrence rate and how important the Gleevec is. I hope you are still reading.

      over 3 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Jacky21, please update us re your GIST and if you took Gleevec. I procrastinated and didn't start on the Gleevec before my post-surgery 3-month CT scan and doctor visit, and that was a big mistake. I had a new tumor in my stomach and my pancreatic lymph nodes were swelled! My doctor told me to start the Gleevec and it would take care of it. (The reason I procrastinated was I wanted to wait till I felt better to start it, but they said the reason I didn't feel good was probably the new tumor, and I would actually feel better taking the Gleevec.)

      First question: Does anyone know if Gleevec will take care of GIST when it's in the lymph nodes? I've been taking it a week now.

      Second question: According to CVS's information, Gleevec works by reducing the seratonin in your body. I take Zoloft, which is seratonin, for fibromyalgia symptoms. Has anyone else noticed a connection between GIST and taking an antidepressant/seratonin?

      Thank you!

      over 3 years ago
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    JACKY21 posted an update

    Have any with Gist Tumor Removal decided not to try the gleevec because of all the many side effects. What about checking on it every 3 months without treatment. I have other issues and I believe the gleevec will be a major problem for me. Any suggestions. Also, those who have larposcopic surgery for stomach gist tumor, how long before you really felt back to normal. Also, having problems adjusting to the word Cancer is Gist Tumor really cancer? Please give me all the advice. Will go to oncologist next Wed.

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    JACKY21 shared an experience

    Other Care (invited other doctors and insurance nurses for advice)

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    JACKY21 shared an experience

    Clinical Trial (None - but maybe?)

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    JACKY21 shared an experience

    Decision Point (Will I start med to keep from reoccuring? Probably Not - Too Many side effects)

    1 Comment
    • BarbarainBham's Avatar
      BarbarainBham

      Jacky21, I had a GIST removed in February and I haven't started the Gleevec yet, although my doctor has told me to. Are you having CT scans to be sure your GIST has not returned?

      over 3 years ago