• Jaden's Avatar

    Jaden shared an experience

    Drug or Chemo Therapy (Chemotherapy): Jaden gets chemo every Wednesday in clinic, every month he has to be hospitalized for three types of chemo and not to mention side effect from chemo therapy. So far he hasn't require blood transfusion yet, but he is getting neupogen shot every night for 7 days after his chemo. He doesn't have much nausea or vomiting but he already got admitted to the hospital for high fever. We were there for six days because the fever won't break. The nose culture result came back a viral infection. That's why I am very protected of him. I don't bring him to the public anymore. I don't allow friends or their kids visit us. But if they do, they can't be sick and they have to wear mask and make sure they wash hands. Every visit to the hospital has not been easy. I cry when he cry, I am happy when I see him smile. Every procedure is terrified .

    1 Comment
    • romanina's Avatar
      romanina

      He is so lucky to have you--so protective and loving!

      almost 4 years ago
  • Jaden's Avatar

    Jaden shared an experience

    Procedure or Surgery (Surgery): When My 28 months old son was initially diagnosed with Rhabdomyosacroma in his facial/throat we as his parents was very devastated. Our dream was crushed, our comfortable lives has torn apart. Our routine has changed to something unfamiliar. This is every parents worse nightmare. As soon as Jaden was hospitalized, there was tons of surgeries and procedures scheduled for him. We were hospitalized for 10 days not knowing what to except. Each day he had to do a procedure. On the second day of his admission, he went through three surgical procedures, including tumor biopsy, central line insertion for chemo, and bone marrow biopsy follow by CT scan, bone scan and MRI while he was still sedated. Poor little Jaden went through so much. He also got spinal tap, lymp node biopsy in OR in separate occasions. Everyday there was so many procedures and blood works. He was so traumatized and scared. Since that admission, he has been having nightmare every night. And that's not the end of the torture yet, Jaden also a G tube placement for future feeding because he is not going to be able to eat due to the mouth sore cause by radiation.

  • Jaden's Avatar

    Jaden started following

    User: GregP_WN