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    jag1110 asked a questionBreast Cancer

    Are there any triple negatives out there that feel like it's only a matter of time before it comes back?

    6 answers
    • SusanK's Avatar
      SusanK

      It's tough not to think about it occasionally. Every cancer patient worries to some degree about recurrence. Triple negative...most people lump breast cancer into one category. My family physician has limited knowledge of tn and so does my plastic surgeon. I have to keep reminding them that no, I am not taking any drugs for it because it's not fueled by hormones. When I worry, I try to search out the positives of my cancer. My lymph nodes were clear and the margins were good. I also feel like I've done all I can do--mastectomy and that killer chemo. I try to get on with life, enjoying my family and treasuring the good times with friends and my husband. Cancer is a part of my life/history, but I won't let it rule my life as it did for nearly a year of surgeries, chemo and recovery. Stay strong and find positives in your life to cling to. Visit the tnbcfoundation.org website for a downloadable booklet on tnbc if you haven't already done so. Good luck.

      over 4 years ago
    • MarnieC's Avatar
      MarnieC

      Hi jag1110 - I didn't have TNBC but I did have that feeling and there were several things that helped me through that (because I knew it to be a detrimental way to think): (1) I went to see a counselor, (2) I checked into EFT (which helped me a lot), and last but not least (3) I began meditation and focusing on more positive ways to think, stress reduction, etc. The meditation was the thing that made the biggest difference for me. I found out that by changing your mind, you can change your life. The cells of your body are listening to your thoughts and doing their bidding, so learning how to put aside thoughts that don't serve you is a really good step in the right direction. I now teach meditation - I'd love to help you if you're open to that. Hugs!

      over 4 years ago
    • Jaimebrie's Avatar
      Jaimebrie

      Hi jag1110,

      I definitely feel that way. I completed treatment in 2011 and I worry about being triple negative too. I had told my oncologist that I wanted to take tamoxifen or femara or arimidex but of course she told me I could not take any of those drugs because they would not help me since I am triple negative. I told her at least I would feel like I am doing something to help prevent the cancer from coming back. After chemo, I was "on my own" as far as meds were concerned and that was scary, for as much as I hated having chemo and was deathly ill from the chemo and was hospitalized many times and always dehydrated and had to go for fluids at least twice a week, at least I felt I was doing something to fight the cancer. But I am staying strong and positive and my cancer is in remission right now. Whoo hoo! All good positive thoughts to you and stay strong.
      Best always,
      Jaimebrie

      over 4 years ago
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    jag1110 asked a questionBreast Cancer

    Is there any triple negatives out there? I would be interested in hearing from you and how you cope.

    4 answers
    • SueRae1's Avatar
      SueRae1

      I am being treated for Metastasized TNBC and Advanced Renal Cell Carcinoma. I agree with nancyjac, worrying about side effects is part and parcel of being treated for cancer of any type. I went through menopause before I started chemo. I suspect you were entering that phase of your life when you started treatment, and based I my experiences it only made it worse. I started having hot flashes again last year. I can only imagine how uncomfortable the manifestations of menopause combined with similar side effects from chemo were.

      over 4 years ago
    • ticklingcancer's Avatar
      ticklingcancer

      The side effects of chemo suck <-----(I bet they XXX'd that out..lol). I had chemo brain pretty bad when I finished, about 10 months ago. It's a lot better now. Still have neuropathy. I think it may be getting better but it still has a LONG way to go!!

      over 4 years ago
    • Mel's Avatar
      Mel

      Hi. I am a triple negative also, had a bi-lateral mastectomy with reconstruction just had implants put in Dec. 27th finished chemo. November 27th (hey wait a min. by b-day is May 27th weird!!) hahah... I still have side effects on some things, not sure if I've been put into menopause or it will come back (hasn't yet!) on the coping part I don't know my days are up and down like a roller coaster and I am not sure why?? :(

      over 4 years ago
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    Hi Charden63, I know where Tipton is, sort of. It's good to talk to people from Iowa for once but wish it was better circumstances. I am going to start the Feb 5th Group at Trinity on 1st Tues. of every month from 7-9. Don't like nights but need the support. Does anyone go to that one?

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