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    jakechaya shared a video

    I am a Hodgkin's Lymphoma survivor, cancer-free for a year. In my extended life, I am focusing on giving other caregivers and survivors hope. You may find this 2 minute videos entertaining and light, yet informative. Both videos are an "English Bulldog's advice about cancer care.

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    jakechaya wrote on Liju's wall

    Hello Liju,

    In 2010 I was where you are at today. It took until 2011 to diagnose Hodgkin's Lymphoma Stage 4. The first two months are the most difficult because the shocking news, uncertainty, new experiences, body sensations etc. It was quite an intense change of life for me. But through my wife, caregivers, my medical team and church, I learned that God was in the details of every day and I lived one day at a time. I am now cancer-free. I believe God extended my life to give others hope.

    Blessings,

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      Liju

      Thank you for the encouragment, im trying to take it a day at a time and trusting in Gods plan for me.

      almost 4 years ago
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    jakechaya posted an update

    I have been cancer-free for 9 months and have attended cancer support groups and met a number of people online and in my clinic and church who are survivors or caregivers. I am learning there is a percentage of the population 12,000,000 survivors and 44,000,000 caregivers who are seeking support and care to discuss deeper personal and spiritual issues that they do not want to share publicly.

    I am developing a cancer chaplain role to specifically reach those people who have theological and spiritual concerns and fears. I am aware of chaplains, counselors and advisors doing this type of work, but I see the need to be so great, I believe there is room for dealing specifically with the Christian faith.

    My question is, "In your experience, do you see the need for this type of 1-1 spiritual care for cancer survivors?" Thank you.

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    jakechaya shared an experience

    Other Care (Spiritual Care): As I reflect on my cancer treatment experience, I am learning that God is in the details of daily life and so often I missed those details. Today I focus on living each day and being thankful for the little things of life. I am finding God has a vision of the future for me as He extended my life. I also realize my extended life isn't simply to have a comfortable retirement, but to help other rebuild their lives and have hope in their new normal.

    As I surround myself with Christians who have a good balance and understanding of pain and suffering, I see this as an area needing development across all diseases, but cancer survivorship and care giving is the most urgent.

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    jakechaya shared an experience

    Other Care (Hospitalization): After two chemotherapy treatments, the result was total energy loss and a global infection that sent me to ICU for a week. My care was outstanding and when I returned home, I received continued excellent care from my doctor and technicians at the clinic. One aspect I found lacking was finding the right people to provide spiritual care, other than my pastor and cancer support group from church. I was looking for a care coach who focused on the spiritual aspects. This led me to create a model for spiritual care in cancer survivorship.

    I am now developing this resource online as a virtual care coach. I realized cancer creates an urgency to take care of issues in life we often put off. And to make the right decisions often is based on wants, desires or fears. I found the spiritual need to be great since most people find talking about personal financial and spiritual concerns to be awkward. Perhaps we can develop better ways of helping survivors and caregivers in these areas.

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