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    jalaa8 wrote on shoch's wall

    Shoch,
    I recently corresponded with a woman who was on the recent Dr. Oz show re stomach cancer. She was kind enough to write back. I'm sure she wouldn't mind if I shared her experience with you. Here's her email to me.

    When I went to Sloan Kettering in NYC, they informed me that I would never be a candidate for surgery. They believe that once it hits an organ, the statistics show that you will have the cancer back so they will not even consider surgery. I have befriended another woman who had Stage IV stomach cancer and went to Sloan, had no surgery but so far thank goodness is cancer free for 2 years like me.

    The Cancer Institute of NJ has a different view on this. They believe that everyone is curable. I had 6 rounds of Cisplatin, Taxotere and 5FU after 3 rounds I was cancer free. They completed 6 rounds just to be on the safe side.

    My surgeon oncologist gave me the choice as to either proceed/not proceed with the gastrectomy. He told me that for reasons unknown, if you don't remove the stomach after having stomach cancer, the cancer will return in a year. To me it was a no brainer so I opted to have the stomach removed. From what I understand, my lesion on the liver was just confined to one area so they removed that part of the liver as well and my gallbladder.

    After my visit on the Dr Oz show, I have met the woman that runs the Cant Stomach Cancer website, Debra Zelman. She had stomach cancer and it was 90% into her liver. She too was told to put her affairs in order and was sent home to die. Needless to say, she was never given the option for a gastrectomy but she has been 3.5 years clean or as she puts it.. her cancer is not active.

    Debbie went to MD Anderson in Texas. Her Drs name is Dr. Ajani. He is on the cutting edge of the latest and greatest cures and treatments for stomach cancer. He travels to the Orient twice a year. Asian countries are the key to new advancements because stomach cancer is one of the leading cancer killers for them. Why? They don't yet know.. maybe diet but any new treatments are coming from that side of the world.

    After you speak to your Drs and if you feel that you need or want another opinion, I would highly suggest that you contact www.cantstomachcancer.org and ask to get Dr Ajani's direct line. Tell them that Mel sent you. On Debbie's recommendation, I am sure that he would review your case.

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      shoch

      Thanks, Judith! Info on the cancer center in NJ, Debra's organization, and her doc at MD Anderson is really helpful. I am meeting a surgical onc at IU Simon Cancer Center in a few weeks who is the only surgeon in town qualified in debulking & HIPEC. Unfortunately she did not train at Sloan-Kettering or institution of similar caliber. The consult is just a meet-and-greet in case of a recurrence. I have faith that I will not need her or anyone else's services going forward...in an act of that faith I had my port removed yesterday! (suggested by my onc the week prior)

      Just curious, do you have a feel for the difference between cantstomachcancer and nostomachforcancer? They seem to have similar missions.

      Since you seem to have an interest in CAM per your post below, I would like you to know that almost since the time of my diagnosis, I have regularly taken Graviola (see Sloan-K's herbal info sheet), and also have added AHCC. Mangosteen is raved about by people my in-laws know for its protective effects against chemo (also on Sloan-K website).

      I've found the big-selling book "Anti-Cancer" to be interesting and informative, although the anti-cancer diet can be problematic for gastric cancer patients struggling to maintain weight. Just like everything else, you have to take the advice that is most convincing to you, and adapt it to your case.

      I should really add this info to my profile here!

      about 2 years ago
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    jalaa8 wrote on shoch's wall

    I have just been introduced to Quantum Energetics and will be meeting on Thurs. with a woman who does this. Not completely clear, but I do know it involves a complete diet change (no gluten or sugar) plus taking certain "herbs." She follow a book by Hulda Clark, "A Cure for All Cancers." I'll keep you posted.

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    jalaa8 wrote on shoch's wall

    Thank you for the trial that is available. In the beginning, I reasearched hundreds of trials, only to be eliminated by a few due to a bleed within three months. Totay I will get on this radiation pellets placed into the liver and your GYMMSA trial today to see if I'm eligible. I've heard of the pellets used for prostate cancer. Thanks for any avenue to explore. Lots of prayers to you!! 16 months is terrific, although I know we're expecting 30 years. We can -- no, WILL, get there!! Too much to live for and contribute!
    Judith

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