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    User: Lirasgirl33

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    janetamy shared an experience

    Celebration (Nov 2013, 6 month followup cerivcal biopsy results were great!)

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    janetamy asked a questionCervical Cancer

    Any one experienced rectal proctitis with mucus discharge from pelvic radiation, how was it treated, did u get it under control

    4 answers
    • Rthompson's Avatar
      Rthompson

      Yes, I suffer with both inflammation and excessive mucus discharge. Mine is somewhat different though as I have a colostomy from pelvic exenteration surgery. I was actually hospitalized for the inflamatiin in Aug when my bowels and stomach completely shut down. I am currently in a binding agent, Colestipol, to help with the mucus and a loose stool issue. I also have a rectal fistula and suffer with intestinal mucus discharge vaginally. Unfortunately, there is nothing they can do about this issue. I also take an anti-inflamatory medication ti help in that area. I know women who have tried hyperbaric oxygen treatments to help with radiation damage. It really depends on how severe it is and what the degree of discomfort you are experiencing. There are various forms of treatment from medication to laser or surgical procedures depending on these factors. I wish you good luck with any /all if them.

      almost 4 years ago
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      janetamy

      Thanks for the response, right now I've been prescribed sulfasalazine tablets & proctofoam, I will follow up with my drs recommended next step. I know this side effect (proctitis) is very common with any kind of pelvic radiation.

      almost 4 years ago
    • geekling's Avatar
      geekling

      I don't have mucus so much as there is blood leakage from a radiation scar.

      No, I do not have it under control and, to date, no doctor has offered to help me in the slightest.

      In fact, one hurt me further because I was foolish enough to follow his instruction and use a fleet enema prior to a sigmoidoscopy. The stuff is much to caustic for someone like me.

      Wait, I take the no offer statement back. One doctor offered me a colostomy bag and another a cream which would supposedly help if I used it twice a week ... and it would, of course, leak out instead.

      Here is a strange one which helps on a temporary basis. I have found that using a small clove of garlic as a suppository helps. No, it doesn't stay put all that long but it helps and I find that more acceptable to use than some horridly expensive medical cream that is causing Lord knows what other side effects. If the garlic is, um, bothersome (it is strong medicine) than there is a type of garlic called "elephant garlic" which is much milder and can be (the cloves are huge) cut down to fit.

      No, it is still not "under control" as, for me, that would mean the scar had healed completely, but the blood loss is much less.

      Good luck.

      almost 4 years ago
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    User: SunnyD

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    Celebration (Finished treatment): Finished all treatment May 2013. Follow up pet/ct on 10/13 was perfect!

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    janetamy posted an update

    Pet CT scan following treatment, 10/13 came out perfect!

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