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    Jayne asked a questionColorectal (Colon) Cancer

    5 year NED mark

    14 answers
    • BoiseB's Avatar
      BoiseB

      Congratulations on becoming a 5-year survivor. I also noticed from your profile that you have been a member of WhatNext for 5 years. Congratulations on that also. That makes you a Senior member here. I have been NED for almost 4 years. Two years after the reoccurrence I asked my Dr.s if they could back off on the scans as I was being exposed to a lot of extra x-rays due to back problems. My Dr. told me that since one of my cancers is stage IV and the other one is a very aggressive cancer stage III with a high rate of return I would have to have a CT-scan at least once a year for the rest of my life. And blood work twice a year. So follow with the rays depends on the stage and numbers of your cancers.

      about 17 hours ago
    • Whitey61's Avatar
      Whitey61

      Interesting point brought up.,when folks say they are at their 5 yr mark, is this from time of diagnosis, or when treatment officially ends and are declared NED?in my opinion 5 yrs means nothing, a family member was recently diagnosed with a reoccurrence after 20 years NED at the very same location a breast lumpectomy was previously performed,

      about 13 hours ago
    • BoiseB's Avatar
      BoiseB

      Whitey the five year mark is the basis for survival rate statistics. And it is calculated by the first clean scan. The frequency of scans and bloodwork depends on the kind and stage of the cancer. Most stage IV and some aggressive cancers require lifelong yearly scans.

      about 11 hours ago
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    Jayne shared an experience

    Procedure or Surgery (Surgery): 4 Video Assisted Thoracic Surgery procedures, the last time had a lobe removed. no serious problems and way better than having my rib cage cut open!

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    Jayne posted an update

    Going for my final (!) scan next week. I've been 5 years NED so am hoping this is the end of the never ending CT scans! I'm nervous but optimistic that it will go well. What are olthers experiencing in terms of follow on monitoring after the magical 5 year mark?

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    Jayne started following

    Question: For caregivers

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