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    jazzhead68 asked a questionBrain and Spinal Cord Tumors in Adults

    Experiences with Avastin for astrocytomas?

    5 answers
    • Fusionera's Avatar
      Fusionera

      Hi Jazzhead,

      I am sorry your wife is not tolerating the Avastin well. I've had a good experience with it so far, and it has made a difference because although it is not a chemo drug, it is a very effective anti-inflammatory. I have had elevated protein levels show up in my Urinalysis, but nothing high enough to warrant stopping the drug. The big thing that has helped me is to get a port put in. My veins are pretty tired and scarred up after dealing with my stupid Oligoastrocytoma for nearly 20 years. The nurse can both administer chemo and draw blood without having to poke my poor arm!

      It sounds as though your wife needs to address things with her neuro-oncologist as soon as possible. I hope things get better for her soon.

      about 3 years ago
    • Michelle30's Avatar
      Michelle30

      Yes...I have been on it for 2 years.I also had high protein. It makes me very tired.All I wanna do is sleep.No enery.It started making me sick so it got reduced....Seems ok now.

      about 3 years ago
    • Michelle30's Avatar
      Michelle30

      I also have a port in my chest.Much better than being pricked all the time. Im off it now....The steroids were worse.Made me real sick.

      about 3 years ago
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    jazzhead68 shared an experience

    Drug or Chemo Therapy (Chemotherapy): Temodar is easy to take, but really wipes her out.

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    jazzhead68 shared an experience

    Oh No (Cancer has spread/Metastasized): Found out my wife's tumor is spreading microscopic tentacles through her brain. She's back on Temodar, along with Avastin. Swelling in her cerebellum is causing extreme nausea and dizziness 24/7.

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