• jazzlady50's Avatar

    jazzlady50 wrote on leeleep1's wall

    Hi! Congratulations survivor! This is jazzlady50 and I am also a NHL survivor, it will be 10 years in October that I finished my chemotherapy! Yeah! I also am originally from Topeka, Kansas but I now live in Concord, North Carolina.
    Are you tired all of the time? Have you ever regained your full energy? Now I have a real problem with sleep apnea, and I still see my oncologist every 6 months, sometimes 12 months, it just depends.
    How are you now and are you having any left-over problems from chemo?
    I would love to hear from you. My email is [email redacted]
    Talk to you soon! God bless you.

  • jazzlady50's Avatar

    jazzlady50 started following

    User: GregP_WN

  • jazzlady50's Avatar

    jazzlady50 shared an experience

    Other Care (Home care): My best friend, Stacey, was my home caregiver. My husband, at the time, was a VietNam veteran and in the VA Hospital, and she stepped up to the plate to give me whatever care I needed. You can not do it by yourself, you need someone who is there for you, who helps you and supports you in every way. She was an angel to me, always will be, and I hope that someday I can "repay" her for what she has done for me. She was my cheerleader, my coach, my nurse, my housekeeper and cook ... she did it all!
    Before I started chemotherapy, I got onto the internet and found out from other survivors about diet, what you should be eating while in chemo, etc. Everyone said fish, seafood, fresh fruits and vegetables, so ... that is what I ate. One time, after about 2-3 rounds of chemo, my oncologist asked me "What are you eatiing?" I thought, oh no, am I doing something wrong? Well, I told him and he asked me where I got that information, and I told him off the internet, and he told me "Keep it up, it's working." So ... eat lots of fish, seafood, fresh fruits and veggies ... NO red meat at all!

  • jazzlady50's Avatar

    jazzlady50 shared an experience

    Celebration (Remission): When I finished my 6 months of chemotherapy, my oncologist wanted to do another full-body CT scan AND bone marrow biopsy ... okay ... guess what? Cancer is in remission ... I am okay, I am not at death's doorstep anymore, I can see my little girl grow up ... I can have my little girl (age 7) back home with me. She had to stay 6 months with her grandparents as I could not take care of her and go through chemo at the same time. Oh my God! I am going to be okay ... I could not believe it, but it was true!
    I have been in remission for 9 1/2 years!! I still go every six months to 12 months for check-ups, CT scans, blood tests, etc., but I am still in remission, I am still battling cancer, you always will be, but that is okay too because we are/will be cancer SURVIVORS!!
    I took my first cancer survivor walk two months after finishing chemo and I cried tears the entire lap. Guess what? After 9 1/2 years in remission, every time I do a cancer walk, I still cry tears the entire lap ... I cry because of joy and gratitude, because of the struggle I went through, and also because of the ones who did not make it, like my father, my aunt, so many little ones.

  • jazzlady50's Avatar

    jazzlady50 shared an experience

    Side Effects (Chemo brain): Hair loss, chemo brain, feeling old ... of yeah. I thought that when I start losing my hair that I would just break down and cry, but I didn't ... I looked into the mirror and saw this woman with bald patches all over her head and I laughed! It really did look funny. I was losing my hair right from the start, my head was itching like crazy, and there was hair falling out everywhere all the time, so ... I called my friend (my caregiver) and asked her to come and shave my head ... she thought that I was crazy, but I told her that I was going to lose it anyway so what the heck. It was the best thing that I did, no more itchiing and having hair falling out all over the place.
    You feel a little awkward at first with a head like a cue ball, but after a short while I felt like, no - this is my testimony as to what I am dealing with right now and going through right now and it is like my badge of courage for everyone to see, to see that it is going to be okay and that I am a survivor and that there are a lot of us SURVIVORS!
    Your hair will grow back, eventually, but it will not be the same hair .... maybe better, maybe worse, but definitely not the same .... and it's okay.
    "Chemo Brain" is real ... and it stays with you for awhile, and awhile, and awhile ... ha ha ha
    You suddenly forget names, places, etc. that you should know without even thinking about it, but you have these "empty train cars" pass by and there is nothing in them when they should contain all the information that you have known since the beginning of time, but they're empty .... and then hours later when you are talking about something completely different, here comes the information that you needed earlier, it just pops up by itself! It is really weird, but funny, and acceptable because you DO have chemo brain.
    You feel like you really have been through something, kind of like experiencing an all out war, and you HAVE been through something ... a war with cancer. Your body had been through a lot, and at times, you physically feel that you have been through a lot, and you have .... so be kind and gentle with yourself, pamper yourself, it's okay to do that because you deserve it! You are (or will be) a cancer SURVIVOR!

  • jazzlady50's Avatar

    jazzlady50 shared an experience

    Drug or Chemo Therapy (Chemotherapy): OK, here we are ... in a room with a bed and chair, my choice, and a TV and an IV stand to hold all the goodies! ha ha ha
    I was scared to death the first day of chemotherapy ... I really did not know what to expect, the doctors told me that they had made many advances in chemotherapy such as giving you Prednisone to control the tummy sickness, etc., but I was never told how totally physically draining the chemo would be, or that for months, and longer, you do not get your physical strength back, and you will never be the same person as you were before, physically.
    All I did for six months of my life was to eat, sleep and go to chemotherapy ... too tired and drained to do anything else ... but I endured and got through it.