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    Oh No (2nd Pathologist): (UPDATE)I got a call from my doctor yesterday, and he said his pathologist could not determine what the tumor was so they needed to send it to Emory in Atlanta. I will have to wait another week to find out what is growing on my hip. I'm really confused now. If it benign would it have shown up so bright on the PET scan? If it was cancer wouldn't the 1st pathologist know that relatively easily? They did do another blood panel, and my white blood cell count is up.

    (1st Post) I’m entering my first fight with the ‘Big C’. A Lytic bone lesion of left hip was found, and after CT Scans, MRI Scans and PET Scans the rumblings of the doctors are that it is cancer, possible bone cancer because my left hip showed up ‘bright’ as I was told. I had my 1st CT biopsy before x-mas, but it was not conclusive, so I am doing it again this Thursday, (1/3/19). Doctors do not think it originated in my hip. Why wouldn’t it show on the PET Scan? I’m exhausted, not hungry at all, and my back is very painful. I am Positive for Chek 2 and Lynch. I’m a 39-year-old married female with one biological child. My maternal grandmother had breast cancer, my mother had breast cancer, and my maternal grandfather had lung cancer. I’m confused, tired and angry. I need answers! I’m scared

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    GregP_WN wrote on JBarteaux's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/bone-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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    Question: First Fight

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    JBarteaux asked a questionBone Cancer

    First Fight

    11 answers
    • BarbarainBham's Avatar
      BarbarainBham

      JBarteaux,
      I'm sorry you are confused, tired, and angry. You probably had your biopsy today. Read and learn what you can and make a list of questions for when you talk to your doctors. Take a friend with you to help you remember the info. You'll feel better after you learn more and have a plan. Hopefully it won't be cancer, but we'll stick with you if you need us.

      If you decide to get a second opinion, we usually recommend a National Cancer Institute-associated Comprehensive Cancer Center because they are very up-to-date and large medical centers. Here's a list by state with contact phone numbers:
      https://www.cancer.gov/research/nci-role/cancer-centers/find#South-Carolina

      I'm not familiar with your town's location in Georgia, but Emory University in Atlanta, or Medical University of South Carolina in Charleston are on the list.

      Please update us when you find out about the biopsy.
      Wishing you the best.

      6 months ago
    • JBarteaux's Avatar
      JBarteaux

      I got a call from my doctor yesterday, and he said his pathologist could not determine what the tumor was so they needed to send it to Emory in Atlanta. I will have to wait another week to find out what is growing on my hip. I'm really confused now. If it benign would it have shown up so bright on the PET scan? If it was cancer wouldn't the 1st pathologist know that relatively easily? They did do another blood panel, and my white blood cell count is up.

      6 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      JBarteaux, because large medical centers see more patients, their pathologists have usually seen more types of cancer cells. Different types of cancer are treated differently, so it's important to be diagnosed correctly.

      Your doctor is doing the right thing for you by sending it to Emory, which I recommended to you in my other post. Emory is on the list of National Cancer Institute-associated Comprehensive Cancer Centers, so they will have pathologists that should be able to diagnose it. Please update us.

      5 months ago
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