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    Jdrccapr shared an experience

    Drug or Chemo Therapy (Chemotherapy): Starting tomorrow 4-15-19 so we'll see.

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    Jdrccapr shared an experience

    Oh No (Cancer has spread/Metastasized): My dad was recently diagnosed with cholangiocarcinoma. He starts chemo tomorrow 4-15-19. They have given him a year maybe a year and a half but who knows right? He has a good attitude. I'm just so scared of what the next however long will be lime for him.

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    • hlrhea's Avatar
      hlrhea

      I am so sorry to hear about your dad. I was diagnosed with intrahepatic Cholangiocarcinoma in 6/2011. I had 3/4 of my liver removed along with my gallbladder. I had 7 months of chemo and 30 rounds of radiation. I know of several CC patients who were given an “expiration date” and are living years after it passed. So, as scary as it is, don’t give up. If you haven’t already, join Cholangiocarcinoma Warriors on Facebook. It is an awesome group of CC patients that you can ask for questions and prayers and who will answer your questions, give you insight, help, suggestions, support, and love. It is so great to “talk” to people who are going through the same rare cancer. It took me 6 years before 6 1/2 years to meet anyone with my cancer. Wish this group was around when I was diagnosed. Also the Cholangiocarcinoma Foundation website is an invaluable resource and they have an amazing conference every year for patients, caretakers, doctors and researchers. It is so great to meet and bond with people experiencing the same cancer. The conference gives you hope for the future.

      9 months ago
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