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    jearlesred asked a questionColorectal (Colon) Cancer

    Problems with colostomy

    • CrazyHarry's Avatar
      CrazyHarry

      I'm using basically the same thing. Except a hollister single piece pouch system. I'm also using a skin barrier product from 3M called cavilon which is a miracle product. My wife has had Ostomy problems for years and just started using it and it extended her wear time from 2 to 5-7 days. If you want, I can send you a few packets.

      One more thing that helped was a convexity in my pouch. I have a chubby middle so it helped to have a solid form there.

      BTW, my Ostomy is the only thing working. I'm back on FOLFOX chemo and feeling like total XXX. Only 7 more weeks to go.

      almost 4 years ago
    • MFitzell's Avatar
      MFitzell

      I agree with Harry. I had similar problems (two major leaks while working. nightmare). Once I used a convex application(the wafer, not the bag), I have not had any problems. Best to you.

      almost 4 years ago
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    jearlesred asked a questionColorectal (Colon) Cancer

    Open Wound Care

    • CrazyHarry's Avatar
      CrazyHarry

      My daughter had some bladder surgery and had a huge open wound. It took quote a while to heal, but in the end, the scar was a lot smaller than I expected.. It's amazing what our bodies can do.

      My wife also had an open wound, which we used a wound vac on. It was a little inconvenient but she healed extremely fast. You may want to check in with your doctors.

      best wishes in your healing journey..

      about 4 years ago
    • abrub's Avatar
      abrub

      I had a major open wound after abdominal surgery, and the scar wasn't wide. It did close in from the ends over time.

      about 4 years ago
    • BeckyTice's Avatar
      BeckyTice

      I had robotic surgery at the belly button. Then developed Seroma [an open wound] and it's just no fun. Seroma is caused when the body heals too quickly and closes over the fluid filled hole... or that's how I understand it.

      This is how I understand a Seroma... A seroma is an accumulation of fluid in a tissue or organ that can occur after surgery. The fluid, called serum, leaks out. Cells are typically present in the fluid, which is normally clear. If it gets blocked, or heals over too quickly, it can get infected.

      Here's what I was told.... Seek prompt medical care if you notice a lump near the surgical site, if fluid starts to drain from the surgical site, if there is redness, warmth or swelling, or if the site feels tender. Also seek prompt medical care if you have a seroma that is being monitored and you notice an increase in its size, or if fluid drainage, redness, warmth, swelling or tenderness develop at the site.

      They had to cut open the seroma and put me on some pretty hefty antibiotics that were not so nice to my veins. My daughter [a GNA] has been repacking the wounds twice a day and I've been doing so much better.

      For more information google seroma, but don't let it scare you.... get the information you need and put it behind you. In my opinion, some people wait too long to get help [thinking they did something wrong or thinking it's more cancer issues] and cause some pretty nasty pictures to be posted on the internet. People who go to the doctor when they see a lump, redness, warmth or swelling don't look as bad... and can get it under control pretty quickly.

      Hope it helps...

      about 4 years ago
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    jearlesred asked a questionColorectal (Colon) Cancer

    Lingering side effects of pelvic radiation

    5 answers
    • lisaissa's Avatar
      lisaissa

      Hi jearlesred! I had 6 weeks of radiation ending at the same time as you and am still seeing side effects from it (passing blood here and there along with occasional pain). I had a colostomy done in November 2012 and was given the ok to go forward with the reversal in the next few weeks. I'm scared to have the reversal with still having lingering effects from radiation. Not sure what to do.

      about 4 years ago
    • jearlesred's Avatar
      jearlesred

      Hi lisaissa, since posting this question I have had to have another colostomy put in. My doctors discovered two abscesses and a small leak. It's strange because I was given the okay for reversal back in November, had the reversal, and didnt show any signs of leaks or infection for six months. My doctor tells me we can reverse it again in another six months, but I'm not so sure about that. I know the effects from radiation can show up years after treatment - I'm scared too.

      about 4 years ago
    • Beaner54's Avatar
      Beaner54

      Hi jearlesred; I was diagnosed with Stage 3C endometrial cancer in Dec. 2011; had a total hysterectomy; chemo; internal and external radiation treatments. In Aug.2012 I had a colonoscopy and was diagnosed with Stage 2 colon cancer; had
      a hemi colectomy but no further treatments.
      I continue to have occasional abdominal bloating and bowel issues that may soon require wearing Depends. I believe this is all due to radiation damage. I am not sure how to answer your questions but my hunch is that the surgeons do the best job they can and every patient has their own individual results.. That's how they get their statistics, I suppose. I am thankful that I did not need a colostomy but recently I had an elevated CEA level and may need to have another PET scan. Not sure what's ahead? and find this concerning some days.
      Wishing you well.

      about 4 years ago
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    jearlesred shared an experience

    Oh No: On April 26, I started to experience some nausea and I couldn't keep my supper down. Same experience on that Saturday and Sunday, although on Sunday, I had a fever that topped out at 101.7. I planned to go to my cancer center the next day to get some blood and urine cultures done and I fully expected to find that I had a UTI. As it turns out, after a CAT scan, we found I had two abscesses, one of which was accessible to a drain. The following day the drain was inserted and I had a gastrografin enema as well, just to make sure I didn't have any leaks. Although, since radiation ended last July, my colectomy last September, and my ileostomy last November, even my doctors didnt see this as a feasible possibility. We were wrong. I do have leak in my colon and as the fluid output from the drain turned brown, we knew it was also infected. I have never heard of developing a leak this far out from treatment, but there you have it. As treatment, I had a colostomy put in on Friday. This will be the third ostomy in general and my second colostomy specifically. The plan is that we leave it in for at least three months before reversing it again.