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    Jelenae shared an experience

    Procedure or Surgery (Implant chemotherapy port): Simple hospital day surgery that meant more wait and wait than anything. Gave me more time to spend with my sister. Left me with a serious itch, I don't tolerate adhesives well, and I had medical superglue on the wound, steri-strips, and paper tape on the gauze covering which caused hives.

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    Jelenae shared an experience

    Drug or Chemo Therapy (Chemotherapy): Doing the Folfox regimen and having the pump to carry home was a bit awkward, but it beat having to make continual trips in to the office for infusions.

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    Jelenae asked a questionColorectal (Colon) Cancer

    First round of chemo was easy on Folfox - no side effects

    9 answers
    • zubsha's Avatar
      zubsha

      My first and sixth were the worst. For me exercise made it better (I really noticed an upswing in nausea and fatigue when I skipped a day) I also needed to have almonds always on hand in case I got nauseated. It is a great sign that the first wasn't too bad You will sail through this!

      about 4 years ago
    • Joeyb's Avatar
      Joeyb

      When I was on this regimen my hands started with the cold sensitivity and they ached from the get go. After about the 3rd or 4th round I developed Hand And Foot Syndrome. Oncologist changed chemo meds due to Hand & Foot Syndrome. I also had some nausea.

      about 4 years ago
    • GolfGirl's Avatar
      GolfGirl

      I had 4 rounds pre-surgery. I got sick the first round, mostly due to constipation caused by pain meds, anti-nausea meds and the chemo itself. Each round the sensitivity to cold got a little worse and by the 4th round the neuropathy kicked in. I remember barely being able to walk - very temporary thing though 2-3 days at most. It really wasn't as bad as what I had prepared myself for.

      I just finished my 3rd of 12 post-surgery treatments. Not going so well the 2nd time around. I've had an allergic reaction during the last 2 drips, the neuropathy lasts 5+ days and I have been violently ill on day 2. I'm having a 20% reduction in the oxaliplatin next time and the doc says if my side effects don't improve he'll stop the chemo - I'm scared. I am willing to tough it out, I'm 6 days out and I'm feeling like my "new" self again.

      about 4 years ago
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    Jelenae asked a questionColorectal (Colon) Cancer

    Can I get experiences regarding hair loss? I know it's a little thing...

    16 answers
    • myb's Avatar
      myb

      I was on Oxaliplatin and 5Fu for colon cancer and started losing hair about 2 inches in length at chemo 9 our of 12. It stopped after chemo 10 thankfully. Now after chemo, I noticed I have a receding hairline that keeps growing though nothing visible to anyone but me and my hair dresser.

      about 4 years ago
    • DJS's Avatar
      DJS (Best Answer!)

      It is sooooo not a little thing!

      From the moment of diagnosis, this was the thing that hit me the hardest. Not because I have particularly gorgeous hair (I do not), and not because I am particularly gorgeous period (I am not). I just couldn't bear the thought of looking in the mirror and not seeing me there. I'd been through something similar, when a reaction to a medication made me gain over 80 pounds in a couple months, and it was like the Twilight Zone: when I would look in a mirror I would quickly lean a bit to the side because my first thought was always someone was there in front of me. Awful.

      In between bouts of sobbing, I got a couple wigs, some detachable bangs, attachable sideburns (!) and even a thing called a halo, which is essentially just a circle of hair that looks great under hats. I got scarves, turbans, and hats. I even bought some colorful wigs (turquoise! pink! etc.!) that I thought would help me rock cancer. (Now that I'm sober I can't see me actually wearing these.) I kept on crying...but not as hard, and not as long.

      I noticed my hair thinning out a bit a week ago, but a couple days ago there was no denying it was coming out. Yesterday....wow. I had no idea it would be so quick. I had an appointment with my hair stylist this morning, and instead of the cute little pixie cut I had imagined we had to go all the way. She styled my wigs (bangs cut, thinning out a bit to look more natural, etc.), and you know what...I didn't shed a tear. That was this morning, and I'm still okay.

      I think you just reach a point where you can deal with it. Make sure you have at least one wig that will let you look in the mirror and see yourself looking back. Get a wig in a cut and/or color that you always wanted but just didn't have the hair for or the guts to try. Take everything five minutes at a time, then ten minutes at a time...and keep going until this horror show is over.

      My closest friends kept telling me that hair grows back, that curing the cancer was the object here...all the usual stuff. I still cried, and really didn't want to hear that from people who had their hair. I was told it grows back thicker, darker, curlier -- I didn't want to hear it. I just wanted my hair the way it was, so I could look like me. And then I saw this blog, and I think this may be what blew the clouds away.

      http://mommybeatscancer.com/2013/06/03/how-long-will-it-take-my-hair-to-grow-back-after-chemotherapy/

      Suddenly I knew what to expect on the other side of hair loss, and that meant a lot. I also checked out videos on YouTube that demonstrated how to make it look like you have eyelashes and eyebrows when chemo takes them away. Here's a fun one, and she has a lot more:

      http://www.youtube.com/watch?v=BMBmS-v-w5I

      You can get a free wig from the ACS, so that's a great place to start. A group called Good Wishes sent me a gorgeous scarf as a present. I splashed a little cash at a few places...what the heck, I've got cancer and I deserve it! And I'm going to be alright.

      I hope this helps. I hope all of us get to the place I got to today...it actually will grow back, and we're going to be alright. (And my wigs are so cute I may wear them sometimes even after I get my own hair back!)

      Five minutes at a time....

      about 4 years ago
    • Joeyb's Avatar
      Joeyb

      I didn't lose all my hair but it did thin out. I found it to be a very humbling experience. Started losing my hair after 2nd treatment. I choose not to cut my hair, although I did have the beautician cut for my wig.

      about 4 years ago
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