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    Jen2d wrote on janigirl's wall

    I had double masectomy and diep flap reconstruction this past April 18, 2012. I was told I was thin and would probably have a B cup breast. I was ok with that. I didn't want my muscle used if at all possible but it turned out he did take it. He said my veins were to small to work with without taking the muscle. In my recovery, that has given me the most problems. Very little discomfort in the breast area. They seem much larger than a B cup. But the stomach area is very tight. I have a difficult time standing up straight, its a real effort. The dr.s nurse says I need to work on strecthing it out. The first 2 weeks were very painful. Now on my 3rd week and feeling much better. Get tired very easily. Have 4 drains, I hope to have out next week. I had my surgery done at the Cleveland Clinic. It was supposed to be a team of 2 plastic surgeons doing the reconstruction, but it turned out the second dr. didn't show up. He got caught up in another surgery so my dr. worked on me for 9 hrs. It was supposed to be a 12 hr. surgery so it makes me wonder if I got the best possible outcome. Today, one of my stitches broke open and started bleeding. I'm seeing the dr.s nurse tomorrow. Seems he went on a 2 week hiatus right after my surgery and I've only seen his nurse since the surgery. I have an appt. with oncology next week also.

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    • janigirl's Avatar
      janigirl

      I had diep reconstruction on 3/28. I am very thin and they ended up using a small piece of stomach muscle. I am almost 5 weeks out and just starting to feel somwhat more normal. Standing up straight is still quite difficult at the end of the day. I had my surgery at university hospital. Unfortunately I did not have enough skin for the left side so I have a expander on the left. Between both, it is very sci fi

      over 4 years ago
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    Jen2d wrote on rcgrahamm's wall

    Sorry to hear of your diagnosis. Learn as much as you can from the web sites online and know that you have time to make decisions. Find out from your dr.s all you can and write it down. HER, Estrogen, Progresterone positives or negatives. The dr's will want you to make the decisions on treatment. (lumpectomy or masectomy). They will only give you the options. So you have to read alot to make up your mind. As far as chemo, if needed, there's a pretty standard protecol. My dr. told me cancer cells double every 100 to 200 days. So my breast cancer on the previous year was approx. 1/8 inch and not-detectable. This past year's mamo showed a 1/4 inch suspecious area and long story short, they found Stage 1, invasive lobular cancer.

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    Oh No (Diagnosed): Diagnosed with invasive lobular cancer and LSIS and ADH. Dr. said I was very high risk or a recurrance. The small, one quarter inch cancer was removed during a surgical biopsy when the core biopsy showed the ADH, atypical ductal hyperplasia. Went for a second opionion because I was not getting good vibes from the first surgeon and so glad I did. I'm now at the Cleveland Clinic breast care caner center. Scheduled for a double masectomy and a DIEP free flap reconstuction. They said I'd be in the hospital 5-7 days and out of work for 2 months. I have lots of sick time tho and the plastic surgeon I have is not much in favor of implant reconstruction. He said your much better off 10 years down the road with what I'm having. Only major hospitals can do this kind of surgery because you have to have a microsurgeon.

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    • janigirl's Avatar
      janigirl

      I was diagnosed with lobular cancer in both breasts in oct. 2010. I had bilateral mastectomy, chemo and radiation. I just had the diep reconstruction 3 weeks ago and am home recovering. Feel free to contact me if you have any questions. I am from Cleveland and had my surgery at university hospital. good luck to you

      over 4 years ago
    • MarnieC's Avatar
      MarnieC

      Hi there- looks like you're getting lots of good feedback and support here, I'd just like to add that I would also love to help you in any way I can. I'm an 8-year breast cancer survivor and I write a breast health blog (usually daily) which covers news, diet, inspirational things, book reviews, all sorts of things. If you'd like to have the details of my blog, just let me know (I don't want to be pushy here!). Sending you lots of love and healing today.

      over 4 years ago
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