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    jenbei asked a questionThyroid Cancer

    Does it get easier?

    20 answers
    • AllyPulliam's Avatar
      AllyPulliam

      If someone has said this already, I missed it and apologize in advance: Cancer is NOT an automatic death sentence!! I'm 5 years out from thyroid cancer diagnosis and not once has my medical team said anything that made me fear that my husband and daughter would be left in this world without me. That being said, I do still worry at times and it's normal to let the "What If" monster take hold of you. Listen to your medical team, think about it for a while, don't be afraid to say "I need time to think about this" because it IS a lot of information to absorb, and if it feels right, do it! I did ask my doc about the prognosis of life after this and I was told that as long as I take my meds properly, then chance of recurrence was slim. Also, as you can see, you're NOT alone in this journey! Lean on those who love you. Best wishes for you and your family.

      over 6 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      Hey Jen. I'm 2 weeks shy of my one year anniversary of my surgery for thyroid cancer. I had the central and right neck dissection with 7 malignant lymph nodes. All as gone extremely well so far. My face neck and shoulder are still numb but are showing signs of life as nerves regenerate. Which by the way of not too comfortable. Still trying to get my thyroid replacement right although we are getting close. I did the RAI too and had to go without thyroid replacement for 3 weeks. Most unfun. When you do that make sure you have sent your kids and pets off somewhere else for a week or 2, or have your hubby put you up in a nice hotel so you don't nuke the family.

      As for the RAI diet, it's not as bad as they say. I did fine. Just get some non-iodized salt. Stay away from seafood and premade food. Trader Joe's has lots of wonderful options. .

      My TC was a bonus after fighting an epic battle with rectal cancer. And still 2 years later dealing with lower unit plumbing problems.

      Even with the problems, it's good to be alive and cancer free.

      This past weekend I got to play with my dog at an agility trial and we had a blast.

      best wishes to you on your healin journey.

      over 6 years ago
    • Carolina18's Avatar
      Carolina18

      Jenbei - you are not alone in your journey, by any means. Keep in mind that our treatment for thyroid cancer, especially papillary carcinoma is different from other types of cancer. I am 10 years out. My doctors have been very supportive. I facilitate a thyroid cancer support group. Our support group takes a focus directly at thyroid cancer rather. I would urge you to check out www.thyca.org. The thyca website has so much information to share for people like yourself. It is possible that you may have a support group not too far from where you live. Not sure, however. Look at the support groups within your state as well as surrounding states. There is also a person-to-person network within Thyca. There is also a closed Facebook page called Thyroid Cancer Sisters. It is a sight where you will most definitely see that you are not alone. Just ask to be invited. Some of us are "crazier than others" (LOL!) but then again, we have a lot in common, too. With warmest regards.

      over 6 years ago
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