Jeni, So let us know how it went was there any sign of cancer outside of his colon? Did you have a good Christmas? Is he ready for surgery next Monday? We are with you and will keep you both in our thoughts and prayers.
- Bath, NY
- Member Since Dec 2012
Their Diagnoses (1)
- Spouse/Partner: Colorectal (Colon) Cancer
- Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 4 years ago, Male, Age: 51, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know
- View this journey (5 Experiences)
jenilovesryan shared an experience
Other Care (Diagnosis): Cancer.... in cecum, husband is getting surgery to remove 1/2 colon on New Year's Eve morning. I'm frightened beyond belief... Tumor is 3cm in cecum. CEA is .75 (he is smoker). Nothing seen in liver. Had chest x-ray yesterday and has PET scan tomorrow.
He is so young. Doctor said it could be genetic and could order genetic testing for his daughters.
I'm very frightened. Major surgery on a holiday!
Jeni, Thanks for the update. Based on what you have said right now there is no evidence it has spread beyond the colon though the PET scan will tell more. You should know that CT scans, x-rays and PET scans can't prove that what they see is really cancer. CTs and X-rays see differences in rissue density and PET scans see metabolic activity, with cancer tending to be denser and more active. I assume that the CEA was 75 (not 0.75), which is high but not too high (My oncologist has told me of CEAs scores of several hundred) and consistant with the cancer in the colon.
46 is young to get colon cancer without a family history. Now that he has established a family history all of his blood relatives should get colonoscpoies starting at 36, including his daughters. This should help prevent them getting it.
The surgery is not a lot of fun (I have had it) but not the worst. It is also probably better on New Years Eve than New Years Day. He won't feel much like celebrating for a few days but he should only be in the hospital for about 4 days and it should only take about 3 weeks to get back to light work (6 weeks for heavy lifting).
So far eveything looks as positive as it can be. Let us know what the PET scan shows and be sure to have a good Christmas, while next year will not start out good we are all hoping that it gets better as the year progeresses.
SOrry about the CEA number. I thought it was .75... wow I have a lot to learn.
The doctor said that this number of the CEA is expected since Ryan is a smoker and those levels tend to be higher. That number I have read should go down ............
Yesterday Ryan went to PET scan but they neglected to tell him to prepare for it, so he didn't and of course he couldn't have the scan. Now he goes back today (hopefully with his mom) to do it again. I can already see that he hates the trip back and forth to the hospital.
I have to keep things at the pace they were going around here. Normally I'm upbeat and love Christmas. I haven't done much. I poured out what little presents I've purchased on my bed yesterday and just cried.
I baked a little for others (i'm big into making cookie trays and bringing them unexpectedly to others) but it's mechanical and not fun. I want so badly to have the normalcy (if that's possible with my family) of years past for at least the holidays but I can't get there.
Off I go to work (I work with those who have disabilities advocating for their rights). Today is a fun day of handing out holiday baskets of food and toys for families who are in need. It gives me perspective and I smile when I say Merry Christmas but I'm so sad inside and have nothing ready for the holiday on my own end.
Thanks for your kind words.
Jeni, No need to appologise, I know that when they start throwing out the numbers some people just seem to miss them completely, my wife never gets them. In my last note I failed toi mention that a 3 cm (about 1.2 inches) tumor is a realtively small tumor and I suspect that the surgery will remove much less than half the colon. My colon tumor was much larger and I only lost about 8 inches of colon.
PET scan preperation is not really a lot of fun. Not eating any carbs for 36 hours migh seem OK but you really do miss them. I would guess someone dropped the ball on the instructions but in the future he will know what to do. I always hate the paperwork before scans, ity is always the same answers that they already have (no there is bno chance I am pregnant, I'm male). I wish they would just get out the old copy.
I can also undersatand the dislike of the trips to the hospital. Hospitals are hnot fun places and it is sort of like going to get kicked in the stomach, not something we would do given a choice. It is good that you have someone like his mother to go with him in your place when you can't or need a break.
Holidays during treatment can be a problem, I know. If you can compartmentalize things and sort of forget about the cancer as much as possible that will help but it still wont be like a normal holiday. The one thing to remember is that it appears that things were cought early enough that with a little luck treatment will be over well before Christmas next year so you xcan look forward to getting back to normal then. For now give thanks for the Drs and nurses that afre treating him and all of the medical technology that will save him.
One piece of advice about how you are feeling and dealing with things. You need to make time for yourself and allow yourself to get away from the constant worry and chores of caring for him. I know that often cancer is harder on the caregivers than the patient, it has been for my wife. Set aside some time to do things that make you happy and feel good. It can be as simple as going for a walk or watchihjng a favorite movie. Just try to relax and forget about cancer for an hour or two. Also watch out for signs of depression in both Ryan and yourself. Depression in cancer patients and caregivers is common and easliy treatable.
Let us know how the PET scan goes and somehow have a Merry Christmas.
jenilovesryan wrote on aimo5465's wall
I found out 5 days ago that my husband has a tumor in his cecum. We go to the surgeon (after a colonoscopy confirmed). The doc is pretty sure it's cancer but we await the pathology reports. I'm scared... he is 46.... and his name is Ryan.
I'll keep him in my thoughts. It takes a long time to get those back (it was agonizing waiting a week!), but all you can really do is be strong for him. I find it easiest to cry to my mom or my close friends rather than in front of him, that way he can cry to me if he needs to. Be strong!