• Jenjenvaldez's Avatar

    Jenjenvaldez posted an update

    Seems like just yesterday my ENT sent me for a sinus catscan that lead to the discovery of a brain tumor on my cerebellum. I've come a long way learning to walk and balance again but my gait is still off. Tonight I finished cycle 5 of 13 of temador or chemo. Trying to be brave and strong and fight but finally giving in to my stubbornness that I do need to chat and checking in with my doctor is just not enough to help me "heal".

    2 Comments
    • Lirasgirl33's Avatar
      Lirasgirl33

      Hi Jenjenvaldez. We are here for you. If you ever need to chat let me know. We can exchange emails, or chat through FB or even via phone. You are not alone. We are all in this together. Best wishes to you and your family. Sending hugs your way.

      about 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      Like Lirasgirl says, there are lots of people here to talk. One tip for you, post your requests to talk to some one, or comments and questions in the questions tab, people will see them there. Here, as a status update on your own page not many people will see it, until you get some people/friends following you. Shout if you need to talk.

      about 4 years ago
  • Jenjenvaldez's Avatar

    Jenjenvaldez shared an experience

    Drug or Chemo Therapy (Chemotherapy): They say if you have to have chemotherapy this is the way to go. I don't think there is any good form of chemo to take. Temador is a pill form of chemo and goes directly to the brain. It's awful and the smell and taste is enough to make anyone gag. I feel like a biohazard the way Oncomed sends me these meds....individually wrapped and counted...5 days on and 3 weeks off. I'm also on 2 anti nausea meds and a steroid to help with the nausea. I call the dethomex my monster steroid because I turn into a raging bulimic when I take it. All binge and no purge. I can do this.

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    Jenjenvaldez shared an experience

    Procedure or Surgery (Surgery)

    1 Comment
    • Jenjenvaldez's Avatar
      Jenjenvaldez

      I started out having a shunt installed as my tumor was blocking where the cerebral brain fluid is produced. This was supposed to "cool things down" in my brain so the tumor could be more easily removed. I look like the girl in the dragon tattoo after this procedure lol. It's hard to come to terms when it wasn't your choice for a new do lol. A few days later I had a tumor removed the size of a golf ball from my cerebellum. No more migraines, I'm able to walk without vertigo but most important I am alive and functioning. I do feel like a Frankenstein with the 2 incisions on my scalp. The numbness you feel is crazy some days I wish I had a headache and not all this. Over 120 types of brain rumors and I happen to have a very rare and malignant one.

      about 4 years ago
  • Jenjenvaldez's Avatar

    Jenjenvaldez shared an experience

    Radiation (External radiation )

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    Jenjenvaldez started following

    User: GregP_WN