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    jennjq started following

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    jennjq shared an experience

    Celebration (Finished treatment): His last chemo treatment was in November and hasn't had to have any more since his blood work has been under 5 for his HCG levels for the past 6 months.

    3 Comments
    • debshephard's Avatar
      debshephard

      Question for you- did he have to have surgery on the lungs or abdomen? How did the doctors address the spread to the brain? Was the chemo sufficient to take care of it? Thanks.

      over 4 years ago
    • jennjq's Avatar
      jennjq

      No surgery on his lungs or abdomen. Chemo took care of it as well as the tumors in his brain. He had to have emergency brain surgery in July because the steroids were failing to control the tumors that spread to his brain. Thank God we happened to be at his Oncologist appointment that day and his Dr sent him straight to UCSF ER. They did an MRI and found that the tumors were throughout but the right side was basically one giant tumor making him lose control of everything. They had to drill a hole in his head to drain fluids the next morning before surgery because he started posturing. The rushed him into surgery and about 3-4 hours later they got the biggest masses. They kept his skull flap off for a week to let his brain swell then retract. They started his chemo the next day and he was in the hospital for 1 more week while getting his chemo then released.

      His CT scans have shown there were 2 spots on his lungs that the chemo took care of but still show up. However, they are half the size they once were so his Dr. thinks it's just scar tissue left over since his HCG levels are good. They are keeping an eye on it though. Unfortunately he has been having a setback recently concerning his skull flap. It was infected so they had to remove it 2 months ago to do 6 weeks of 24 hour antibiotic IVs. That's all cleared but they have to make a new skull flap for him which will take 2 weeks as soon as we can get him back to SF for a special CT. He's been really bad the last 2 weeks because he lost control of his whole left side of his body causing multiple falls. I got him back to UCSF and he was fine 2 days later. They said he's suffering from "Sagging Brain Syndrome" which is caused by the displacement of his cranial fluids due to his skull flap being off and it's causing his neurons to misfire. So that's what I'm dealing with right now.

      over 4 years ago
    • debshephard's Avatar
      debshephard

      What an ordeal. I can't imagine what you are going through right now - may you both have the strength to get through this.

      over 4 years ago
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    Side Effects (Depression/Anxiety): He did get depressed due to him being away from me and our baby and he was still depressed when he came home but I made him fight through it by focusing his thoughts on positive things he still had going for him like the fact his Dr was/is very comforting with his promise that everything was going to be ok.

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    jennjq shared an experience

    Drug or Chemo Therapy (Chemotherapy): His chemo treatment was pretty simple and he never really got sick. He was just mostly tired. He ended up having to be an impatient for a week at a time while receiving his chemo which was his only major complaint but it was fine.

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    Procedure or Surgery (Removal of testicle)

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    jennjq shared an experience

    Oh No (Cancer has spread/Metastasized): He waited so long to go to the Dr that it spread to his brain, lungs, & abdomen.

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    • debshephard's Avatar
      debshephard

      Did the chemo wipe out the cancer in the other organs or did he need surgery to "clean" it up ?

      over 4 years ago
    • jennjq's Avatar
      jennjq

      The chemo got everything. No radiation was necessary. They wanted to avoid it at all costs because we have a baby and he wouldn't be able to be near her if they proceeded with that route.

      over 4 years ago