• Jfire's Avatar

    Jfire started following

    User: Lisa68

  • Jfire's Avatar

    Jfire wrote on Lisa68's wall

    Hey Lisa! I was 36 when I was diagnosed with NSC, adenocarcinoma, stage 1b, I had surgery to remove RL lobe and chemo. I am three years out.

    4 Comments
    • Jfire's Avatar
      Jfire

      I am in remission. Mine was found purely by accident. I had a lump of my abdomen and my primary wanted a CT just to rule out anything, well it caught a nodule in my RL lobe. The lump in my abdomen was nothing but my primary wanted to keep an eye on this lung nodule. I was 33 when that started....we followed it and over the course of the next 2-1/2 years, I was told its nothing,maybe it's a fungus, scar tissue, a pocket of infection.... had Pet scans that said it was not cancer and one biopsy came back inconclusive, took antibiotic therapy for four months thinking it was some weird infection. Every CT scan showed some changes, but never conclusive. In Dec 09 we did another biopsy due to CT change and it came back positive...had RL lobe removed two weeks later, and chemo started day 28 post op. if it had not been for my primary and pulmonary doctors being aggressive and concerned, my cancer probably wouldn't have been detected until I had symptoms. One pulmonary dr told me it was nothing and my primary said no way and sen me to another. I am a never smoker and have no family history of this disease. I never had a single symptom....I know how you are feeling and am here for you! What treatment are you doing?

      over 4 years ago
    • Lisa68's Avatar
      Lisa68

      I had 5 months of chemo, which I responded well to. The 1st ct I had 2 months after starting showed my liver met was gone. I've been taking Tarceva since February and doing very well. ct 2 weeks ago showed very slight increase in a parathyroid node and one of the lung tumors. Dr was not concerned about this because its such a small change but I sure didnt like it! I had absolutely no symptoms. I felt a lump above my clavicle that didnt go way after 2 weeks. Went to PCP, who ordered a chest X-ray. Showed enlarged nodes but nothing in the lungs. CT 2 days later picked up the cancer.

      over 4 years ago
    • Jfire's Avatar
      Jfire

      I'm so glad to hear you are responding well to treatments!!! I have a nodule that showed up last year and there was a slight change to it this year and my dr wasn't too concerned either....hard not to worry though. I will keep you in my thoughts and prayers and contact me if you need an ear!

      over 4 years ago
  • Jfire's Avatar

    Jfire wrote on Daniela's wall

    Hi Daniela! Welcome to the site! Just wanted to let you know that I was in the same boat as you three years ago! I was 36 with two kids, although mine were 11 & 13, and we also temporarily left our home... Florida to California...for four months for my chemo treatment. I am 3 years post surgery and two and a half years cancer free! It will be tough at times but keep your attitude positive! I will keep you and your family in my thoughts and prayers!

  • Jfire's Avatar

    Jfire wrote on Candice's wall

    Hey Candice! I was diagnosed with stage 1B adenocarcinoma and also had a right lower lobectomy in Jan 2010. Less than a month after surgery I endured 6 months of chemo and can now say that I have been clear since! I am a never smoker and was 36 when I was diagnosed. You will be in my thoughts and prayers. Please let me know if I can do anything for you!

  • Jfire's Avatar

    Jfire posted an update

    I had a lobectomy (RL) 2.5 years ago and I still have pain. I've learned to live with it and I've learned what my triggers are. But I was wondering if anyone else has had the same issues and if so what were their experiences and did they find anything that helped. All of my doctors have told me that this is normal due to the fact that I was 36 when I had the surgery. The pain is not debilitating but it definitely hinders my abilitities to do certain excersices and activities.

    1 Comment
    • SelFac's Avatar
      SelFac

      Hi jfire, I had a lobectomy a little over a year ago and did four rounds of chemo shortly after. What kind of issues are you talking about?

      almost 5 years ago
  • Jfire's Avatar

    Jfire shared an experience

    Other Care