• Bug's Avatar

    Bug wrote on Jg1960's wall

    Hi, Jg1960. I see you're new to WhatNext. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

  • ImWorthIt's Avatar

    ImWorthIt wrote on Jg1960's wall

    Hi. I posted an answer to you question/experience. I am sorry you are having to go through all of this. Know you are definitely NOT alone. I too was ER+/PR+/HER2-. Also diagnosed just prior to pandemic.
    As Kalee said, I am determined not to let it get the best of me. I am a little over 2 years out from initial diagnosis and doing pretty well.
    I keep coming back here though because once cancer is an active word in your life's vocabulary, it never seems to go away. We all need support whether we are in active treatment, deciding how to be treated or just processing the fact that cancer is or was a part of our lives.
    Hang in there. Lots of great people here with great advice.

  • Kalee's Avatar

    Kalee wrote on Jg1960's wall

    I'm so sorry you have been diagnosed with cancer....I was diagnosed in 2016 and in 2019. Experiences will differ from person to person, however, I'm determined that it is not going to get the best of me. What plan of care has your oncologist made for you? Some docs prefer to do chemo first and then surgery, I chose to do surgery and then chemo. Some people choose to do reconstruction, and some don't, that's a personal choice and is covered by insurance if you choose to do so. Everyone has a different reaction to the chemo medications given as well. But I was glad I made the decision to have a port put in. I did double mastectomy with reconstruction. I hope this helps.

  • MLT's Avatar

    MLT wrote on Jg1960's wall

    Welcome Jg 1960. I hope we can provide support for you. If your Lymphedema has continued, I hope you can find someone trained in lymphatic massages. So helpful!! Please come here with your questions or just to vent.

  • beachbum5817's Avatar

    beachbum5817 wrote on Jg1960's wall

    Welcome to What Next. I am sorry that you needed to find us. You will find great people here with limitless advice. Someone has usually been through what you are experiencing. You may ask any question that is important to you. I often thought of patients like you who started the journey during the pandemic. I can only imagine how stressful that must have been. Take care.

  • Jg1960's Avatar

    Jg1960 shared an experience

    Oh No: Diagnosed just as pandemic began. Went back and forth on best way to treat, decided to start with antiestrogen therapy hoping pandemic would get under control quickly...that did not happen.

    2 Comments
    • ImWorthIt's Avatar
      ImWorthIt

      Hello Jg1960, This site seems to have fallen apart and is not nearly as active as it used to be. I wanted to let you know you are not alone. There are a few people who do check in regularly.

      I too was diagnosed not long before the pandemic began. I actually got my diagnosis in November 2019. I had a lumpectomy in January 2020 and then got news that they would have to destroy too much of my breast tissue to just stay with lumpectomy so they decided on a mastectomy of my left breast. I had no lymph node involvement. I had my mastectomy in February 2020. I had about 3 weeks recovery and went back to work since I have a "desk job." I was back at work for exactly a week before the decision was made for the initial nationwide/worldwide quarantine. Then back to working from home and I don't think things have ever been the same.
      I am currently starting year 3 of my anti-estrogen therapy of Arimidex. So far other than some minimal joint discomfort on occasion, I am doing pretty well.
      I am quite fortunate that my surgeon and oncologists wanted to go ahead and move forward with my treatment. As I said, I was on the front end of COVID and it had not really been named yet or no-one thought it was going to become a global pandemic. Our hospital recognized that something was happening though and my surgeon and oncologist said they wanted me to move ahead of whatever was happening. My family wanted me to get "second opinions" because they felt things were being rushed. I told my family I was confident in my care team's decision and I intended to move forward with treatment.
      Please continue to share your story and your experience. It may bring more people back into the fold to support you.

      3 months ago
    • Lorie's Avatar
      Lorie

      Jg1960 If you see this and come back plz try posting a question instead of an experience. That seemed to reach more veteran members who used to get and daily Digest. The site is having trouble but we are out here and there's some very good compassionate people willing to help

      3 months ago