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    GregP_WN wrote on jhenicke's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    5X Survivor

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    jhenicke wrote on sugar's wall

    Thank you so much for the message you sent me friend! You have a fellow peach sister here! You and I have the same story. I have endometrial adenocarcinoma. I see the gyn/onc this week.

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    jhenicke wrote on QuilterGirl's wall

    Hello, Thanks for sharing. I, too, was just diagnosed and will see an oncologist next week. Of course, I'm scared to death. My anxiety is beyond what I expected and just am terrified of what's to come. I'm not even sure what stage it is. I do know I have to have the same hysterectomy you had. That's what caught my attention. Just knowing you had it and that you have what I have, just made me smile after falling apart. So just thank you for being in this world. Just your existence is comforting.

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