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    User: GregP_WN

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    Oh No (Cancer has spread/Metastasized): Most recent CT scan, in August 2012, shows growth in the lymph nodes of the chest and neck. Ryan returns at the end of October for a PET, CT, and biopsy.

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    Side Effects (Depression/Anxiety): Ryan, my husband, has constant diarrhea, fatigue, stomach pain, and nausea. He is depressed all the time--we are working on finding a med that will help him with the depression, and he has countless meds to help with all the other side effects.

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    Decision Point (Where to go for care): GIST is very rare and finding an "expert" was impossible. We settled for Cancer Treatment Centers of America. Our oncologist there is definately NOT an expert in GIST, but she and CTCA in general specialize in late stage, hard to treat, and rare forms of cancer.

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    Drug or Chemo Therapy (Chemotherapy): Currently on 400mg Gleevec daily

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    Oh No (Diagnosed): We were told 3 days after surgery that the cancer was metastisized, stage 4.