• meyati's Avatar

    meyati wrote on JNW's wall

    OK-- there are different types of pain clinics, and they seem to push their favorite procedure. A real certified pain clinic can still be less than effective because of what they push. Barbara-even VA pain clinics are that way. The Albuquerque. VA fully used the different types of nerve blocks, then years later the Los Angeles and some Florida VAs began using nerve blocks. This was in the Military Times-not the regional VA news.

    Nerve blocks-- there are a dozen different medical mixtures for nerve blocks. I was a patient person and spent months trying out different mixtures.

    I turned down surgeries for the RSD--and left that clinic. I also started out in an AF pain clinic, where I was given surgery room strength meds. I hit one colonel in the head with an almost full pill bottle. He got the point that the meds weren't working not even a little bit.

    I was told by the effective pain clinic, later by the VA and AF that one reason my nerve blocks worked so well (after we found one that did work) was because I did not take any NSAID, acetaphenmine, alcohol, etc. I couldn't sleep over 3 hours at a time. My right hand was almost black from dead nerves. I would have committed suicide if I hadn't found that pain clinic.

    4 Comments
    • meyati's Avatar
      meyati

      I wish you success. I hope that your system is cleared out of old stuff-even Tyenol and NSAIDs can keep something from working, and working well. It months of nerve blocks before they found a workable combination. Dr. said, If this doesn't work, I don't think that you can be helped.

      You've already gone through so much. I hope that the magic med is found quickly.

      6 days ago
    • JNW's Avatar
      JNW

      Thanks! Yep. I'm good on the Tylenol and NSAIDs. I generally stay away from them anyway, but really don't mix them when I get into pain mgmt. I hope you're right and have my fingers crossed we find a good solution quickly! I'm only 300 hrs away from finishing school so I can get my esthetics license. I'm ready to get back to school and start my "new normal"! :)

      5 days ago
    • meyati's Avatar
      meyati

      I wish you well with school. Sometimes the last few hours seem the hardest-part because I was so antsy..

      Oh, I was the idiot that rode up and down the elevator mumbling test answers until somebody took me like a child to my class-I was still mumbling.

      5 days ago
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    JNW started following

    Question: Spammers

  • JNW's Avatar

    JNW asked a questionBreast Cancer

    Spammers

    15 answers
    • BoiseB's Avatar
      BoiseB

      I recently saw Greg delete some spammers They were back within the hour with slightly different names. Then they were deleted again.

      12 days ago
    • GregP_WN's Avatar
      GregP_WN

      @rene2 I should have said to click on the more button, then click on "Mark as Inappropriate" under that. This sends me an email that something has been flagged. thanks for everyone's help in looking out for this stuff.

      12 days ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Greg is used to getting emails from me on these pests. There have even been a couple to times I told him that an individual looked hinky, but I wasn't sure if they were real or not.

      11 days ago
  • JNW's Avatar

    JNW shared an experience

    Side Effects (Chemo brain): Over 2.5 years out of treatment and after many expressions of concern over my cognitive functions, I was given a neurosych test. The results came back saying, yup, I still have chemo brain and it might or might now get better. My neurologist seems to think that, while there is room for improvement, I shouldn't expect to get back to my prior cognitive levels. On one hand, it's kind of nice to have some validation that what I have been experiencing is quantifiable. On the other hand, it's a little daunting.

    1 Comment
    • 2943's Avatar
      2943

      And anesthesia adds to this cocktail! I had a 'hospital event' that kept me overnight after an in and out surgery and I have no recall of 10+ days after that!

      14 days ago
  • JNW's Avatar

    JNW shared an experience

    Oh No (Unexpected Diagnosis): I've had three major bouts with pain while in survivorship. The first time, docs threw narcotics at it and it kind of helped, but I mostly got used to the pain. The second time it was worse, and they eventually gave me nerve blocks and trigger points. This third time, nothing seemed to help and they are now calling it Post-Mastectomy Pain Syndrome. Now, I'm in breast cancer rehab, which is much more involved than the simple PT I'd been given before, I've been upgraded to a migraine specialist and I'm being referred out to a different pain center that specializes in PMPS. I've been non-functioning for almost two months, trying various meds. I'm really hoping the new pain center can offer more help.

    2 Comments
    • 2943's Avatar
      2943

      Facebook has a 'surviving post mastectomy pain syndrome' group you may want to look at.

      14 days ago
    • charnell's Avatar
      charnell

      I understand. Hugs.

      14 days ago
  • JNW's Avatar