• JNW's Avatar

    JNW asked a questionBreast Cancer

    Spammers

    15 answers
    • BoiseB's Avatar
      BoiseB

      I recently saw Greg delete some spammers They were back within the hour with slightly different names. Then they were deleted again.

      6 months ago
    • GregP_WN's Avatar
      GregP_WN

      @rene2 I should have said to click on the more button, then click on "Mark as Inappropriate" under that. This sends me an email that something has been flagged. thanks for everyone's help in looking out for this stuff.

      6 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Greg is used to getting emails from me on these pests. There have even been a couple to times I told him that an individual looked hinky, but I wasn't sure if they were real or not.

      6 months ago
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    JNW started following

    Question: Spammers

  • JNW's Avatar

    JNW shared an experience

    Side Effects (Chemo brain): Over 2.5 years out of treatment and after many expressions of concern over my cognitive functions, I was given a neurosych test. The results came back saying, yup, I still have chemo brain and it might or might now get better. My neurologist seems to think that, while there is room for improvement, I shouldn't expect to get back to my prior cognitive levels. On one hand, it's kind of nice to have some validation that what I have been experiencing is quantifiable. On the other hand, it's a little daunting.

    1 Comment
    • 2943's Avatar
      2943

      And anesthesia adds to this cocktail! I had a 'hospital event' that kept me overnight after an in and out surgery and I have no recall of 10+ days after that!

      6 months ago
  • JNW's Avatar

    JNW shared an experience

    Oh No (Unexpected Diagnosis): I've had three major bouts with pain while in survivorship. The first time, docs threw narcotics at it and it kind of helped, but I mostly got used to the pain. The second time it was worse, and they eventually gave me nerve blocks and trigger points. This third time, nothing seemed to help and they are now calling it Post-Mastectomy Pain Syndrome. Now, I'm in breast cancer rehab, which is much more involved than the simple PT I'd been given before, I've been upgraded to a migraine specialist and I'm being referred out to a different pain center that specializes in PMPS. I've been non-functioning for almost two months, trying various meds. I'm really hoping the new pain center can offer more help.

    2 Comments
    • 2943's Avatar
      2943

      Facebook has a 'surviving post mastectomy pain syndrome' group you may want to look at.

      6 months ago
    • charnell's Avatar
      charnell

      I understand. Hugs.

      6 months ago
  • JNW's Avatar
  • JNW's Avatar

    JNW shared an experience

    Other Care (Palliative care): Nerve blocks and trigger points to help with recurring pain around the mastectomy site. This helped a little over a year ago. This time, instead of helping, instead, the pain got worse and spread from one area right by the mastectomy site to my entire right torso. Doctors and breast cancer rehab facility are still trying to figure it out. Meanwhile, I can't drive, can't finish school, can't get on with this so called "new normal" that everyone keeps talking about. I'm starting to wonder if the "new normal" is like the "American dream".

    2 Comments
    • charnell's Avatar
      charnell

      ?

      7 months ago
    • JNW's Avatar
      JNW

      Sorry! I had started, then forgotten to complete that little blurb.

      7 months ago