• joannwinston's Avatar

    joannwinston posted an update

    Thanks guys, Harry, Ichabod Crane used to scare the &*%# out of me! My worst problem is I'm a "What if" person. I can take that to the nth level. It does me no good but I can't help it. I also need to stay away from all the confusing info out there. I'm an expert at finding the worst case scenario. I need an "off" button for my mind.....
    I'm glad about this site.

    1 Comment
    • SueRae1's Avatar
      SueRae1

      finding that off button can be hard.

      over 4 years ago
  • joannwinston's Avatar

    joannwinston asked a questionThyroid Cancer

    Dealing with worry

    14 answers
    • joannwinston's Avatar
      joannwinston

      THank you "tickling"! I appreciate hearing from you. To answer your question, the whole thing scares me! Every bit of it. I feel like a big baby... I know there are worse things.

      over 4 years ago
    • joannwinston's Avatar
      joannwinston

      Thank you Tickling! To answer your question, I'm scared of all of it, every bit! I feel like a big baby.... I know there are worse things
      I really appreciate hearing from you

      over 4 years ago
    • joannwinston's Avatar
      joannwinston

      wow, you guys are so great, I think I love you all....

      over 4 years ago
  • joannwinston's Avatar

    joannwinston posted an update

    You all seem so kind. I had a hemithyroidectomy 3 years ago, the suspicious nodule was benign but they found an "incidental" 4mm microcarcinoma (papillary). My surgeon, Dr. Thomas Fahey at New York Presbyterian (he's chief of endocrine surgery and has done over 4000 , probably more now, thyoid surgeries, felt very comfortable leaving the other half of my thyroid in, due to the very small microcarcinoma. He's a very knowledgeable surgeon and I trust him. I've been monitored every 6 months for the first 2 years (US, FNA) and then skipped to once a year. I just had an FNA come back positive for papillary on the remaining side. I need to have a completion thyroidectomy. I'm so frightened that it may have spread. This is consuming my mind. I have a wonderful family and I want to be strong but I'm having such a hard time.
    I've never ever been on any kind of site like this as I'm kind of a private person. But I feel so alone and lost. I think there is a lot of wisdom out there and maybe, just maybe someone can give me some support. Peace to you all.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hi Joann,
      The journey down the Cancer road can be such a lonely feeling. That's one of the reasons we are here. There are lots of great people on the site that have been where you are. My cancer returned once, about 6 months after I was declared "clean". Then I beat that down again, and was "clean" for 18 years, I was diagnosed for a third time, this time with a different type of cancer. Head and Neck, a malignant tonsil. So i know what it's like to sit and wonder. It's a mind game we have to play with ourselves to keep our mind on positive thoughts and out of the negative gutter.

      I noticed you posted this as an update. Just a little tip to help you get response from the community, post this as a question in the "questions" tab at the top of the page, that way it is seen by everyone on the site that browses the questions page, plus it is sent to everyone that is registered on the site with "head and neck" cancer, you will get lots of response that way.

      Give it a try please, repost, (you can just copy and paste) on the questions tab and let everyone give you some help.

      Thanks for posting
      Greg P
      3x survivor
      Team WhatNext
      Community Mgr.

      over 4 years ago
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    joannwinston started following

    User: GregP_WN

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    joannwinston shared an experience

    Procedure or Surgery

  • joannwinston's Avatar

    joannwinston shared an experience

    Oh No