• jocie's Avatar

    jocie shared an experience

    Side Effects (I have had multiple side effects from my treatment.): During treatment, at approximately 1500 rads of radiation, it killed my ovaries; therefore, I went into years worth of menopause in one 10 minute radiation treatment. This in itself was very hard on my body and increased my risk, in addition to the radiation itself, of developing osteoporosis and increased risk of fractures...especially in the low back area and my hips. This effects my ability to do high impact exercise. Also during my treatment, I had an allergic reaction to something and had to go on steroids; therefore, I had weight gain. Due to the area in which I had radiation, I developed a real bad yeast infection to my female private area and anal/buttock area, this caused me to have to take a week break from radiation therapy---it was like the worst blistering diaper rash on top of the worst sun burn...Anyway, I did survive!!!! Once a week, I had to inserts a large probe into my vaginal area to prevent it from collapse/deteriation. Aquaphor was a staple in my house for my skin. Since my treatment ended, I had CT scans every 3 months of my chest, abdomen and pelvis for the first 18 months, then went to every 6 months for 2 years, and then yearly. This cancer can metastisis to the lung, liver pancreas, and could reoccur in the primary spot. That is why so many different CT scans, I have also had a repeat BX to my primary site due to what ended up being a tear not a reoccur-thank the Lord for that! I have also had to have my urethra dilated due to scar tissue from the radiation. I also feel I have had some form of chemo brain-not long term memory problems, but short term memory problems, also my multi-tasking ability has been effected. All of these have gotten better with time. I have finally gone on hormone therapy and this has helped me tremendously. Most doctors are afraid to give any woman hormone therapy that have had cancer...this cancer is not hormone reactive, so it is OK to go on hormones. The hormones have really helped me so much!!! I cant say it enough. I would go through all of it again in a heartbeat....I am here, I am alive, and I pray to God everyday that I continue to stay in remission. When I got my diagnosis, my husband and I were shocked and devastated...along with my Mom. My son was in the 8th grade and my daughter was in the 1st grade. Still to this day, I think of my cancer at least once a day...Cancer does change your perspective of EVERYTHING...good and bad. My cancer is not a very common cancer and there is not much awareness...but I do tell people all the time to go to the doctor even for a hemorrhoid! The word XXX has a very different meaning in my house than in most. We are all very greatfull for my very special XXX!

    1 Comment
    • rap42's Avatar
      rap42

      I also went on estrogen cream. Apparently due to the radiation treatment woman in particular can develop fistulas in the treated area and these can be difficult to repair after treatment. The estrogen creams helps to repair the skin after treatment by increasing blood flow. I just started this treatment and I am not sure how long I have to do it and I can not speak to the benefits yet but wanted to share my doctors recommendation with everyone as well incase it may help others.

      over 3 years ago
  • jocie's Avatar

    jocie shared an experience

    Celebration (Finished treatment): I am a little over 5 years Cancer free!!! 5 years is important with this cancer and the chances of re-occurence is very low. I still have follow-up appointments with my radiation oncologist.

  • jocie's Avatar

    jocie shared an experience

    Drug or Chemo Therapy (Chemotherapy and radiation combined): I had 31 radiation treatments. During the first and last week on radiation therapy, I simultaneously had 96 hours of 5FU chemo through a PICC LINE (96 hours the first week and 96 hours the last week) and on the 2nd day of radiation therapy I also had an IV push of 60cc"s of Mitamicyn C chemo. My treatment was progressively hard on me. Did reasonably well the first 7-10 days, then each day just worse and worse. At the time, I thought I was doing great, but know when I look back on it, I do not have much recollection of much of it. Real scattered memory, here and there....

  • jocie's Avatar

    jocie shared an experience

    Procedure or Surgery (Biopsy that gave me my diagnosis): These answers are only from my biopsy

  • jocie's Avatar

    jocie shared an experience

    Oh No (Other): Thought I had a hemorrhoid that just would not go away!!!

  • jocie's Avatar

    jocie started following

    User: GregP_WN