• JoJo's Avatar

    JoJo wrote on RachaelEJ's wall

    Any chance you go to Cleveland Clinic, they didn't do my surgery but have had all my follow-ups done there. Dr. Rini has a lot of experience with RCC. My open partial nephrectomy was done at Mayo 2009. Hospital 3 days, recovery wasn't too bad. Getting in and out of bed was the worst. Just don't do too much too soon. I'll be praying for you.

  • JoJo's Avatar

    JoJo wrote on RachaelEJ's wall

    When is the surgery?

    1 Comment
    • RachaelEJ's Avatar
      RachaelEJ

      I am scheduled on the 28th this month for a radical nephrectomy and oophrectomy simultaneously. It will be a large incision down my midline to remove lymph nodes as well : /

      about 5 years ago
  • JoJo's Avatar

    JoJo wrote on WildThistle's wall

    I too was dx with RCC, surgery in 2009. Stage 1 - 4.5 cm. Had open partial nephrectomy at Mayo in MN. Had a CT for abdominal pain and GP called to say that there was a mass in L kidney. Now just working on keeping it from coming back. Went vegan after surgery. Have you changed eating/other things after surgery?

    1 Comment
    • WildThistle's Avatar
      WildThistle

      I did consult two naturapathic doctors, and they have me on several herbal medicaitons. I take vitamins and other supplements too. My diet was bad before so going to a mostly vegetarian, low sugar diet is best. I eat no diet foods, or use 'aspertame' at all. I walk a mile or more daily, love my dogs, and just started volunteering at the local humane animal shelter. Since I am 'forcefully' retired after the accident that revealed the cancer I do what I like daily, and have a lot of projects going at once to catch up on what time was lost.

      about 5 years ago