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    jojosmom started following

    Question: Thyroid question

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    jojosmom wrote on BarbarainBham's wall

    There are 3 oncologists in the same practice. I would have to drive 100 miles to get another opinion. Before the current cancer ctr opened I had to drive 4 hrs to the cancer ctr one way because of my nsurance. I've asked her several times about % of recurrence and ale she says is, You're a medium risk.

    1 Comment
    • BarbarainBham's Avatar
      BarbarainBham

      Hi, Jojosmom! I read your profile, and it seemed like you thought your oncologist was unresponsive to your problem when you went to the ER. I understand it would be inconvenient to be treated out of town, but getting a second opinion somewhere else (plus statistics) would be worth a trip. If they are in agreement with your oncologist, you would feel more confident about being treated by her. It could also be a nice day trip this time of year!

      The important thing is to start the process, so it won't delay your treatment. You might want to call the American Cancer Society to ask for a suggestion on how and where to get a second opinion, and if they have funding for second opinions. You could also inquire about their free lodging during cancer treatments in an out of town city, just in case you're tempted to get treated out of town. The ACS has free hotels in some cities with access to a kitchen. I don't know if they provide food or not. The ACS telephone people are really nice to talk to, so ask them anything when you call.

      You haven't mentioned how much family you have for commuting or your physical condition, so I hope that's not a concern.

      Do what makes you happy. Best wishes.
      Barbara

      over 1 year ago
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    jojosmom started following

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    jojosmom asked a questionBreast Cancer

    ? to continue treatment

    12 answers
    • BarbarainBham's Avatar
      BarbarainBham

      Jojosmom, how you handle it depends on things you haven't shared with us---such as do you like the doctor otherwise, how many oncologists are available where you live, how many doctors are in her practice, and do you want to continue going to her after a second opinion.

      Personally if I wanted to continue going to the current doctor, I wouldn't want to embarrass her by requesting a second opinion within her practice (if they would even do it). If it wouldn't be redundant, you could give her one more chance and call her office and say you really need to know statistics to make your decision. Or you could quietly go to ask for a copy of your reports and not tell them why. Many patients get a copy of reports each time they leave the doctor's office just to refer to, so that wouldn't be unusual.

      I would go to another practice, preferably one associated with a medical school and teaching hospital. When you make the appointment, ask if they want only reports of scans or if you need to get a copy of the actual scan to be looked at by the new doctor. Then I would decide which doctor I wanted to continue my treatment. Best wishes.

      over 1 year ago
    • geekling's Avatar
      geekling

      A second opinion needs to be 110% independent of the first opinion.

      Asking of a doctor in the same center will hardly get you an opinion not colored by deference to the first opinion.

      From what you've written, tired though you may be, you need to see a specialist completely unrelated from the one in whom you seem to no longer have trust.

      Best wishes.

      over 1 year ago
    • Kathy1's Avatar
      Kathy1

      Geekling is so right. I realize it is difficult but if at all possible it would be to yur advantage.

      over 1 year ago
  • jojosmom's Avatar

    jojosmom wrote on Rolltidelynne's wall

    Hi, My chemo was 2 years ago. I figured it was the zoladex since
    its something new. IDK

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    jojosmom asked a questionBreast Cancer

    zoladex and sight problems

    9 answers
    • Kathy1's Avatar
      Kathy1

      I had vision issues on Exemestane. My vision got very blurry. Had difficulty focusing. Got headaches when reading. I had other undesirable side effects. Initially my onco said that was not a side effect. I then stated experiencing heart palpitations, high blood pressure and she took me off of it. My vision and everything got better in about three weeks. All I know is it got better so I think it was the blocker. Sometimes I wonder if there truly is a good mechanism to collect these side effects.

      over 1 year ago
    • jojosmom's Avatar
      jojosmom

      Thanks everyone. I had my eyes checked 2 weeks ago and they were fine. My fam dr said vision problems and fatigue are side eff of zoladex. I'm going t see about getting my ovaries removed.
      the 1st 6 injections I didn't have this problem. After being off of it for 6 weeks then getting the 7th injection my vision blurred a lot. I've caught myself falling asleep while driving even.

      over 1 year ago
    • Rolltidelynne's Avatar
      Rolltidelynne

      I've had vision issues and I've chalked it up to my chemo... But I will check my blood sugar just to be sure. I don't have diabetes as far as I know, lol. But I don't want to just assume anything either. That's one reason I didn't get diagnosed sooner lol. Assuming....
      Jojosmom, I get very sleepy driving too! I HATE that! Cuz I'm use to hopping in the car and going out of town!! Driving never was an issue before, but now 4-5 hr trips are hard cuz of my vision n sleepiness!!! Ugh:((

      over 1 year ago